Hello All. - 07-01-2019 03:34 AM
Hi Everyone,
I am mainly here for answers and support from other folks going througjcwhat I am. I was involved with some other online groups and most of the time, no one else was ever online at the same time. That doesnt do much good when you just need a shoulder.
So. My name is Art C. I live in the panhandle of WV right before the VA state line.
Got diagnosed in December of last year (2018). 10 days later I went into John's Hopkins hospital for my 1st surgery. But unfortunately, my skin grafts would not accept normal blood flow, so I had 2 more surgeries within the next 2 weeks finally ending up with a pectoral flap rotation into my right side of mouth. I would be ecstatic if there was another patient on this site that had the same surgery! Please reach out to me if so!
Anyway. I was sent home with PEG tube about a week after that to get ready for 6 weeks of radiation therapy. Oh. I forgot. I had a trach tube in for 8 weeks. Yuch! And I thought for sure that I would be able to eat normally after that was taken out. EEERRRRR!!! (insert Family Feud buzzer here)
1st of all. None of my bottom teeth are anchored to anything. AND, something is going on to when I swallow even soft foods, it seems to get stuck about 1/2 way down. Has any one experienced that? If so, how did they fix it.
I am going down for another swallow study tomorrow. Wish me luck!
That's about all for now. I'll be happy to talk to anyone that wants to chat.
Thanks for listening,
Art C (Gypsyrock)
I am mainly here for answers and support from other folks going througjcwhat I am. I was involved with some other online groups and most of the time, no one else was ever online at the same time. That doesnt do much good when you just need a shoulder.
So. My name is Art C. I live in the panhandle of WV right before the VA state line.
Got diagnosed in December of last year (2018). 10 days later I went into John's Hopkins hospital for my 1st surgery. But unfortunately, my skin grafts would not accept normal blood flow, so I had 2 more surgeries within the next 2 weeks finally ending up with a pectoral flap rotation into my right side of mouth. I would be ecstatic if there was another patient on this site that had the same surgery! Please reach out to me if so!
Anyway. I was sent home with PEG tube about a week after that to get ready for 6 weeks of radiation therapy. Oh. I forgot. I had a trach tube in for 8 weeks. Yuch! And I thought for sure that I would be able to eat normally after that was taken out. EEERRRRR!!! (insert Family Feud buzzer here)
1st of all. None of my bottom teeth are anchored to anything. AND, something is going on to when I swallow even soft foods, it seems to get stuck about 1/2 way down. Has any one experienced that? If so, how did they fix it.
I am going down for another swallow study tomorrow. Wish me luck!
That's about all for now. I'll be happy to talk to anyone that wants to chat.
Thanks for listening,
Art C (Gypsyrock)