Posted By: atul Mucoepidermoid carcinoma - 08-22-2016 02:05 PM
recently my family member diagnosed having Mucoepidermoid carcinoma in the cavity of mouth low grade.. how fatal is it ? what care has to be taken
Posted By: ChristineB Re: Mucoepidermoid carcinoma - 08-27-2016 08:12 PM
Welcome to OCF, Atul. Im sorry to read of your family members diagnosis.

Getting a cancer diagnosis isnt what it used to be. Many patients after treatment and recovers survive and go on to thrive after being diagnosed with cancer. Please dont automatically jump to conclusions that your family members cancer is terminal. That is of course unless the doctors have said its terminal. From what I understand Mucoepidermoid carcinoma cell (MCC) diagnosed as low grade has a very high rate of survival.

OCF, main site --- Mucoepidermoid carcinoma cell
Posted By: atul Re: Mucoepidermoid carcinoma - 08-28-2016 11:06 AM
thanks but confused what to do?
patient in this group having experience for getting treated on mucoepidermoid carcinoma cell can share the outcome if possible will helpful to understand the exact situation
Posted By: gmcraft Re: Mucoepidermoid carcinoma - 08-28-2016 11:34 PM
Dear Atul,

What kind of treatment has your medical team discussed with you? As you may have read in the posts here, response to treatment varies from person to person. Cancer, unfortunately, is one of those conditions where it is impossible to be exact about what the situation is going to be.

You may find it helpful to talk to your doctors and ask them what kind of treatment you are going to get and what kind of side effects you can expect to see. My personal experience was that I had to take things a day at a time without getting too far ahead of myself.

Hopefully someone with a similar diagnosis may come along and share his/her experience with you' but even then, you will need to take individual differences into consideration.
Posted By: atul Re: How long do anyone live with relapse ? - 10-07-2018 05:35 AM
diagnosis : mucoepidermoide catcinoma of left buccal mucosa in 2015 and had only surgical operation and removed the tumor.....if reoccurrence what will be the best treatment... read lot of stuff about alternative theory of not taking radiation and chemo but one can heal by change in life style....does anyone opted not to go for surgical operation and radiation and heal oneself by taking proper diet and proper life style ? reply to the question will be helpful to take action
Posted By: tamvonk Re: How long do anyone live with relapse ? - 10-11-2018 03:31 AM
Atul, please listen to your Doctors and do the rccommended treatments.
Changing diet and lifestyle will not cure a cancer.
The only proven treatments are surgery, radiation and or chemo. Or a combination of these.
I have come across some who chose alternative treatments. Sadly, they did not survive.

Tammy
Posted By: ChristineB Re: How long do anyone live with relapse ? - 10-11-2018 11:59 AM
Im sorry to read about your recent diagnosis! At this time the only ways to eliminate the cancer is thru surgery and/or radiation with or without chemo. Nothing else works,!!!! Not even chemo alone is enough to eliminate all the cancer. Alternative diet based methods will NOT work! Those other "treatments" are promoted by unscrupulous people who are trying to make money off of sick people which to me is disgusting. Trying unproven alternative methods is a waste of precious time allowing the cancer to grow and spread which lowers the chance of survival. Ive seen thousands of oral cancer patients join our online forum over the years. Unfortunately those who refused to go with the scientifically proven treatments have not been successfully treated.

OCF provides only correct, up to date medical info that is scientifically proven. OCF supports only peer reviewed, scientifically proven, tried and true treatment plans to such a degree that its even mentioned in our rules which every member agrees to abide by when joining. PER OCF RULES....Do not advocate for unproven cancer cures or treatments. Anyone who promotes unsubstantiated treatment options will quickly find they are in the wrong place. OCF is monitored 24/7 to ensure only scientifically proven medical info is shared. OCF would be doing its members and every person who finds and reads these posts a major disservice which could injure or kill someone by allowing unproven treatment options to be openly discussed here. Theres hundreds of sites out there which are not monitored, most of them are there to make money. Those sites and the people behind them do not care about their members health or if promoting unfounded treatments hurts anyone. At OCF, we are Health on the Net certified which means we provide only reliable correct medical info. This protects our members from getting caught up in false claims or miracle cures that do not exist.

Quackwatch.org is a website that blows the whistle on unfounded medical info. You may want to run some of those "cures" by that site to get the real info about what they're trying to pass off. Please do not bring unproven treatment ideas to our forum. I also urge you to avoid trying any of them as it most often doesnt turn out as patients are hoping. Wasting time after having the recurrence diagnosis is not a good idea. Recurrences can move very quickly so please choose conventional medial treatments which may not sound as easy as the fake cures but at least the patient has a chance to survive.

The best thing you can do is to find the best medical care you can as soon as possible to eliminate the cancer as quickly as possible. Read posts here and also on the main OCF site to help you to better understand oral cancer, treatments that are proven to work and learn so you can be a strong advocate for your wife. The link I gave you 2 years ago still contains valuable up to date info. As mentioned before a recurrence is NOT a death sentence!!! Im living proof patients can and do survive even when the odds are stacked against them. Ive known many survivors over the years who have been thru recurrences and gone on to live long, happy, healthy lives... those are the people who went with conventional, scientifically proven treatment methods.

Best wishes!
Posted By: tlc356 Re: How long do anyone live with relapse ? - 10-12-2018 12:40 PM
Atul: I see you are from India. The best thing you can do is identify the leading cancer center near you, get your family member there and follow their advice. Here is what I have posted before as survivor advice.

Based on my experience having had two operations for oral cancer since 2003, I would like to suggest four thoughts for newcomers.

1) Since oral cancer hits only about 1% of the population, seek professional care from a medical center that specializes in cancer and has oral cancer specialists on staff.

2) Don’t be afraid to travel extra hours to such a center-your disease can be life threatening.

3) Follow-on care may be done at a location closer to your home that the cancer center works with.

4) Don’t wait to get help, and don’t second guess expert opinion but do get a second professional opinion if concerned.



.
© Oral Cancer Support - Survivor / Patient Forum