Posted By: WendyG Back again. 11 years later - 04-01-2021 08:11 AM
I'm sad to say my husband's cancer has returned. He beat a stage 4 diagnosis in 2009. He has been left with ORN to lower and now upper jaw. We've been advised from numerous specialists that the ORN is too advanced for any kind of treatment so we've been getting on with life as well as we can. Late last year my husband Steve started to develop pain in his tongue again. A scan showed a 2.5cm lesion in his tongue that has since been confirmed SCC.

Surgery was offered but chances of it coming back again are high plus Steve would be facing a lot of issues with quality of life afterwards as well. More so than he has already faced over the last 11 years and he has plenty of them. Anyway Steve decided against surgery as he struggles enough daily already so going through more when odds are it will come back just doesn't make sense to him. He can't have radiation as he had it last time. So he has started chemo and is 2 rounds in. He's having 6 rounds of cisplatin with 5fu. He is a good candidate for immunotherapy and that is next for him after chemotherapy. Our biggest issue with the current treatment he's on is nausea. He has been so unwell with it his weight is now 48kg (105 pounds). He has no more weight left to lose.

The doctors have told us there will be no cure but they said that last time and we've had 11 additional years. We're very sad to be back in the fight but are giving it everything we have.

Does anyone have any advice for nausea at all? He can't eat many things due to a pectoral flap, current tumour and no lower teeth. He doesn't have a peg, can drink and swallow ok still. He doesn't like ginger, has tried numerous anti nausea meds and is on a clinical cannabis trial (we're in Australia so access to cbd isn't very easy which is why we're taking part in the trial).

Anyway, here we are again. Battling through each day the vest we can.
Posted By: Meli Re: Back again. 11 years later - 04-09-2021 08:35 PM
I’m so sorry to hear your husbands cancer has returned after such a long time. I’m 8 years free myself so I can only imagine how you’re both feeling.
I remember struggling with nausea during my treatment and the little and often method worked for me. The nausea wouldn’t go away but I managed to drink little bits all the time and lived on medical nutrition shakes for quite a while.
Best wishes with the treatment.
Posted By: WendyG Re: Back again. 11 years later - 04-16-2021 05:31 AM
Thank you for your kind words. We're still working our way through the nausea issues. Not much relief for him yet but each treatment is slightly better than the one before so that's something at least.
Posted By: Mokie Re: Back again. 11 years later - 04-16-2021 06:51 AM
So sorry to read about this situation. If the Zofran (Ondansetron) and other oral anti-nausea medications don’t seem to be working, maybe eating small spoons of crushed ice chips would give some relief. I’m not sure if they actually know why ice chips works for nausea, but on occasion it does give relief as long as it’s not contraindicated with what’s going on orally with him.
Posted By: WendyG Re: Back again. 11 years later - 04-25-2021 09:53 AM
Thank you for that suggestion. We'll definitely give it a try. He was on a cannabis oil trial to help with the nausea but we've found in the last week it's actually making it worse so we are at least getting a slight reduction in the nausea now and his daily vomiting has stopped thankfully. He has a scan scheduled in 2 days to see how hes progressing and if the chemo isn't working they'll be switching him to immunotherapy. Not sure on side effects from that yet but we'll tackle them if we head down that track.
Posted By: ChristineB Re: Back again. 11 years later - 05-07-2021 06:09 PM
Oh NO!!!! Wendy Im so sorry!!!

Best wishes with every single thing you both are going thru! I know how difficult this is and just how hard it can be to look on the bright side. One positive thing is after so many years of OC dealings, you are so knowledgeable and are a great asset to help your husband with all the OC things. Always remember, there are exceptions to everything and one of the biggest things we always say around here.... "everybodys different" There arent many 3 timers around but Im sure happy to be included with several who are also long term survivors who are OC exceptions.

((( HUGS)))
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