Posted By: ConnieT update so far on feeding tube issue/biopsy - 04-25-2019 12:44 AM
glad to see the crazy is gone from the board today. someone thought they were clever.

biopsy today ENT said it's probably 75% chance of cancer. the tumor board met and were quite concerned but he told me that it seemed more like necrosis from radiation and if i had him backed into a corner, that's what he felt he was seeing. He said it looked like cancer a few months ago but it wasn't so i'm holding my breath.

feeding tube was cleaned out and sutured. It had not healed and was spilling out food and even more painful. They put in staples that need to be removed. I said...gee, you had a c section but no baby! I've had 2 c sections so now he got to experience it. He said this is 3-5 times worse than the feeding tube while it was still in. And remember, he barely took pain meds during radiation. The feeding tube has been an issue since last August. No one in my area (2 counties have been called) carried Lortab (I believe) so he's taking the hydrocodone he never took during radiation and chemo. he had a full bottle.

So i will update on Monday. Long long day. 3 hours under to do both procedures and 8 hours at the hospital. I"m exhausted and he looks like he went through a war.
Posted By: KristenS Re: update so far on feeding tube issue/biopsy - 04-25-2019 03:58 AM
Wow, that's a lot! I hope that feeding tube area finally heals up for him! And glad that he at least has some painkillers on hand to help him through it. No need to suffer when you don't have to; there's more than enough of that to go around.

((hugs))

Keep us posted on what they decide to do about the biopsied part ... I've been reading along and keeping y'all in my thoughts.
Posted By: gmcraft Re: update so far on feeding tube issue/biopsy - 04-25-2019 01:42 PM
I’m glad they have put stitches in to close the feeding tube site. I was told that stomach acid can flow out of the stoma and it can give the patient or caregivers bad burns. So, maybe your hubby isn’t exactly a wimp. Anyway, with stitches in he should now start to recover from that.
Gloria is correct!!! The feeding tube site can become a big problem if its not healing. What comes out of the tube site causes painful burns on the patients sensitive abdominal skin. Its happened to me, boy does it hurt plus it seems to take forever to heal. When it happened to me it was 5 or 6 weeks for the burns to get better. Also all those abdominal muscles are used more than most of us realize which makes even the smallest movements very painful, even more so if there are burns around the tube site.

Best wishes on Monday. We're all hoping for good news.
Posted By: ConnieT Re: update so far on feeding tube issue/biopsy - 04-26-2019 01:24 AM
no cancer. doc even said it today that it did not look like cancer even though he expected it to be cancerous. they were quick to call to tell him good news today!

he's moaning like crazy about that incision and i can't have a lot of sympathy. i had 2 c sections and babies to take care of and he will not take pain meds. he can moan all he wants but no sympathy here. I've been in extreme pain for 6 weeks with a pinched sciatic nerve so I'm hunched over and in screaming pain. So, if he wants to hurt, that's his choice! he won't take pain meds as they constipate him.
Posted By: ConnieT No Cancer. updating much earlier than expected - 04-26-2019 06:00 PM
i posted this yesterday figured it would get lost in the posts. i don't remember what the ENT called it but he was pretty sure it wasn't cancer once he saw the area he biopsied. So many ups and downs with this cancer stuff. Guess he gets to do it again in a few months. He went back to work today which surprised me.
Congrats!!! So happy to hear theres no cancer!!!
Any updates?
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