possible new cancer?

Posted By: ConnieT

possible new cancer? - 04-05-2019 08:27 PM

Oncologist was pleased with PET scan results. Radiology Oncologist....not so much. he is not sure if the area that lit up near his adenoids is cancer or inflamation. He is taking the case to a board of doctors to discuss. If they are not concerned, another scan in three months. Husband is very distraught understandably but I said..one day at a time, that's all we can handle anyway. I told him that i read of others who have had multiple oral cancers and are still around!

Still processing...........
Posted By: ChristineB

Re: possible new cancer? - 04-06-2019 03:06 AM

Im so sorry the PET results werent as expected!!! Having a PET scan light up is fairly common with patients who are still in their recovery mode. I know many here who went thru getting
false positives on scans, myself included. An infection or inflammation will light up the same as anything thats cancerous. I hope your husband will listen to your sensible approach to the PET results. Taking it one day at a time and staying busy will help pass the time until the next doctors meeting where more info will be given.

You are correct, theres been OCF members who have endured multiple rounds of OC. A recurrence is everyone heres worst fear!!! All OC patients go thru so much and to think about going thru it again can be mentally and physically debilitating.

Please keep us posted. Best wishes to you both!!!!
Posted By: ConnieT

Re: possible new cancer? - 04-11-2019 12:39 AM

thanks for the response Christine.

I am driving him to have surgery on the 24th. i believe it is for the feeding tube. that has been the worst issue this whole time for him. it's not healing. it was an open wound since they put it in Aug 2018. I haven't heard anything back about the possible adenoid spots. To be continued..........unfortunately
Posted By: PaulB

Re: possible new cancer? - 04-11-2019 03:08 AM


I had a non healing peg tube site (stoma) after the peg tube was removed after 5 or 6 years. They closed the stoma site off with stitches from inside the stomach, and maybe something else. Turns out I have Barrettts Esphogus from the biopsy, but the peg tube site did heal, and closed, and had no problems since, at least with the tube site.

Good luck with everything!
Posted By: ChristineB

Re: possible new cancer? - 04-11-2019 03:59 PM

The feeding tube site should heal within a few weeks. Of course theres too many variables that go with the average of it taking a few weeks for the tube site to close and heal. The first time I had my feeding tube removed I felt like it took forever to heal. Over the years and thru so many surgeries, all my doctors have always been nice enough to give me their precious time explaining things to me in great detail. From what I remember when my tube was removed it took me 4-6 weeks for the site to look like it has closed. My docs said it normally takes a few months for a feeding tube site to completely heal. Paul is correct, the doc can (and usually should) put a few stitches at the feeding tube site to keep the site closed which should help speed up the recovery time. Id guess from what Ive seen here and gone thru, for 6 months your husband must be very careful to avoid heavy lifting (anything over 20 pounds) and anything that could put a strain on his abdominal muscles which could cause the site to open back up. Even something like taking out the garbage could create a problem by straining his abdomen. I know your husband to marches to the beat of a different drum and you can only give him limited help and advice, I really hope he will decide this advice is something he will pay attention to. When the feeding tube is removed, an open hole into his stomach is left which could cause him all sorts of problems if he doesnt follow doctors orders. Even minor infections could potentially turn into major complications if he isnt careful.

I know you understand all of this and are facing an uphill battle to get your husband onboard. Maybe you could try printing out some important feeding tube info and "accidentally" leave your printouts laying in a place he will easily find them and that he's curious enough to pick up the papers and read them. If he sees you reading the papers, it might pique his interest especially if he sees you looking like you are reading something thats very interesting. While he sees you reading, you get called away (check something on the stove, go to the bathroom, make a pot of coffee, etc) and when you put the papers down, thats all it should take to get him interested enough to pick up and read your printouts smile . This printout trick may sound deceitful and I am not someone who advises anyone to be dishonest... but when dealing with stubborn, non-conforming patient you must think out of the box to get them to do what they need to do. This has worked for many other caregivers and gotten their patients to follow doctors orders all without any conflict or saying a word.

Best wishes to you both with the upcoming procedure.
Posted By: ConnieT

Re: possible new cancer? - 04-11-2019 09:34 PM

haha Christine! you get what i deal with!

yeah advice or info out of my mouth seems to be quite useless to him. I do hope they get him on the road to healing. I was eating dinner the other night and he stood right in front of me cleaning it out. YUCKO. anyway, i'm ready for it to heal too!

He has been pretty good about not lifting heavy stuff. i, on the other hand, who has always been a weakling in the upper arm department, have become quite strong for the first time in my life due to having to take care of things because there was no one else to do it. I suppose that's not all bad.

anyway, thanks to all the responses. it is always appreciated and welcomed.
Posted By: ConnieT

Re: possible new cancer? - 04-13-2019 01:22 AM

looks like they decided he needs a biopsy on the adenoid area. radiology oncologist took it to a board to get a second opinion. i feel like things are starting up all over again and I haven't gotten over the stress of the first round. hopefully it's not cancer and the biopsy confirms that.
Posted By: ChristineB

Re: possible new cancer? - 04-13-2019 02:46 AM

Im so sorry!!! I hope its just a problem with delayed healing after going thru rads. After going thru rads w/ chemo, Ive had many more biopsies taken on areas that didnt "look right". Thankfully they were all negative. Hoping the same happens with your husband. Maybe this will be a wake up call and he will begin to understand just how serious OC can be.

Wishing you both all the best. Please keep us posted.
© 2019 Oral Cancer Support - Survivor / Patient Forum