I’m not sure if this is related to my treatment from 2005, but I am having sudden and lasting symptoms pointing to a diagnosis of Paraganglioma(s), I suspect in my thoracic cavity, near my spine (T3-T5) and I don’t know what to do or where to turn.
Has anyone else experienced symptoms with some commonalities of mine here:?
ANECDOTAL NOTATIONS CONCERNING COMPLAINTS: Stabbing Back Pain, 2-5 spinal area, approx between T1-T3 Overall feeling of dread, gloom and doom, weepy Overwhelming sensation of end-of-life, worry & fear driving decisions Stomach upset, pressure, bloating, gas, diarrhea Sharp, mild pain under Left breast on side, near serratus anterior, comes and goes, seems to be improving recently (feels like muscle tear, 2-4 on pain scale) Perception/Awareness of strong pulse, especially in abdomen at times Heartburn / Acid Reflux - increasing for 2 + months normally managed easily with meds Any Sudden Noise (ie: a phone ringing unexpectedly, a car honking, or just a sudden doom/gloom thought even, gives a “jolt” - hyper sensitive to stimuli (rush of endorphins, adrenolyn maybe) Globus sensation in throat, especially on swallowing, new physiological changes in throat area perceived Occasional sense of “too much caffeine”/ being “hypoglycemic” w/out corresponding cause. Excessive uncharacteristic heavy sweating on exertion noted for 3-5, years & noted night sweats the last 2-4 weeks. Easier to provoke or agitate for 2-4 months, annoyed by things that in the past wouldn’t have annoyed Urine output DARK RUST ORANGE color for 3+ years, especially on waking, despite being well hydrated When first waking up most mornings, fast pulsing sensation in skull - pressure feeling (similar to a panic attack) Chest pressure / some pain / sometimes improves with cold or heat PVCs on EKG, feeling like a panic attack, unsettling PVCs / possible SVTs seem related to food intake / gas / bloating / indigestion Feeling in abdomen similar to strong hunger ping, but different and not related to hunger Pressure in chest, side of left breast and nipple area Back pain center of back 2-4 weeks Gas, bloating increased 3 weeks ago - some slight improvement Extremely Foul stools (with sulfur smell) and gas for 2 weeks one month ago, now improving Possible vision changes - some blurriness Blood pressure has been increasing steadily for 6-8 months (as observed) doubled atenolol to 50 each evening before bed, no noted effect Spikes of BP, especially around 7-9:pm progressively, spiked at 235/138, seems related to or cause/effect with PVCs noted on EKG Pressure / bloating in upper stomach Spinal neck pain when standing or looking downward (like reading a book etc) Feeling of being both hot & cold at the same time Feeling "jittery" often, "on edge" Stomach is larger recently, bloated and full; increased in size Perceived cognitive decline 3-5 months — difficulty with recall. Noticed for 1-2 years more irritability and over reaction to stressful situations Urgency to urinate — 2 years — but especially relieving (overwhelming sensation of relief) for 2 weeks urine output very dark, rust colored for 2 years - especially first urine Swollen nodes in left armpit and groin noted recently
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