| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Congrats, that is good news.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Tell your Dad congrats Jaanika and wish him the best of luck from our house to yours.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Jaanika,
Congratulations to you, your dad and your whole family. That truly is good news.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Good news Jaanika. The best answer I ever heard when I was begging my medical team for statistics (I'm a numbers man, but not like david, and poker player) was from my Rads Oncologist..."Eric it's going to be either 0 or 100%, either the treatment is going to work for you or it's not."
From the sound of things your dad is off to a good start! Good luck.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2009 Posts: 5 Member | | Member
Joined: Jun 2009 Posts: 5 | Thank you all! Today I went to see my dad and he was quite OK. He did not look like himself to me as I had never seen him wothout his moustache before  Small thing. He was quite optimistic and wrote us (I was ther with my sister) all about his experiences and feelings and ... I really feel much better about the future right now. He will have to learn to swallow and eat and talk, but we can do it. EricS my dad said that he helped a lot himself to be in this situation - he started smoking when he was 16 and he drank quite a lot of beer prior his diagnosis. He said that the sad thing for him is to see the guys like you - young, never smoked ... The hard thing in this situation is my daughter - she is 15. In my husband family all have died from cancer. I had melanoma when I was 29, my aunt had ovarian cancer a couple of years ago at age of 49, and now my father ... it seems that no way not to get it in our family  | | |
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