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#80366 09-12-2008 10:36 PM
Joined: Aug 2008
Posts: 716
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

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"From the time of discovery and for the balance of life, an individual diagnosed with cancer is a survivor."

By Wendy S. Harpham, M.D., Cancer survivor and advocate


Hope all is well,

Survivor. I've been thinking about this word for a while now. And what does it mean? What does it mean to people like you and me? I know some people view themselves a survivor after their treatments are complete and they are considered cancer-free. And I too was thinking that way. Although, I couldn't shake that fateful day of diagnosis...I can't forget it no matter how hard I tried--July 16, 2008--It was a Wednesday, I just walked into the Barber shop and my mobile rang...I stepped out and my Oral surgeon broke the news...I was sitting in my GMC...He apologized, I said it was okay...We called to set up the appointment with an ENT...We hung up...Then I watched my Barber come out of the shop, step into his Mercedes and drive off. I was alone and I cried. It's a memory like when my Grandfather told me Elvis was dead...Unforgettable. I was playing with some Matchbox cars and my Grandfather was watching TV (I was his remote control back then)...Well, he looks at me and says, "Elvis is dead" and I'm like "Who?" He says, "You know, that "Nuthin' but a Hounddog" singer movie guy..." I continued playin' with the Matchbox cars. Pop-pop told me to switch it to NBC, Johnny Carson was on. Young boy with toys or Barber with Mercedes, it doesn't matter--life goes on. It has too, otherwise we would all go insane. Survival.

I had the tumor removed on August 13th 2008, but that date is not as significant as the other, July 16th. My Girlfriend tells me I'm cancer free even though I'll be going through radiation Txs. I had clear margins; although, I won't feel cancer-free until the radiation is complete...But I do understand her way of thought. Her glass is half-full and mine is just half-empty. No, I'm not depressed or pessimistic. I'm a realist and a pragmatist. I also eat the crust of my pizza first and I tend to read magazines from the last page to the first. I'm quirky...My glass is half-empty, because otherwise I wouldn't be able to fill the rest of it up! I'm 37, I'm middle-aged...Because every day past 70 is a gift. It's my way of thinking and it helps me to survive...Even before that fateful date of July 16th.

Since my diagnosis I've considered myself a cancer survivor...I just never told anyone. I didn't want to because my treatments are not complete. Heck, at the time I wasn't sure about my treatments! But, Wendy Harphram solidified my way of thinking...and it helped. Because I feel just a little stronger as a survivor than not as one...A survivor has strength. I can take my half-empty glass and put a little more life into it.

Well now, going to my Subject Title, "How long?"--I was diagnosed on July 16, 2008...A Wednesday...But, since then I've been wondering how long have I been living with cancer? Since the burning sensation of November 2007?...Well before the burning? I don't know...I'm not asking anybodies guess or even an answer...But I do wonder how long I've had it. I suppose it could have been years. Most likely just months. I don't know. I wish I did. At least I'm a survivor. And that's what counts.

How do you feel? What have you thought? You don't have to tell...But I do wonder about all of you...and I hope all goes well!

Filling up that half-empty glass a little faster since July 16, 2008...Someday will be counting my every day is a gift years! I can't remember what movie it was in...But it's one of my favorite movie quotes, "Every day above ground is a good day..."

Best wishes,

Raymond


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #80370 09-13-2008 03:45 AM
Joined: Apr 2005
Posts: 2,219
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,219
Hey Ray,

Great post. We've discussed this before here on the forum and everyone has their "date" that they say they became a survivor. They all work. I never really thought about trying to figure out when it all started and I think I personally would rule that date out, even if I knew it.

Since my dates were so close together, I have chosen to use my surgery date. I had my biopsy on March 18th, got my results faxed to me (probably not the best way to find out) on March 22 and had my surgery on April 6th.

The key to all of this is the word "survivor" and as long as you can say it, that's all that counts.

I want to wish you good luck as you start your radiation in 3 days and many, many years of calling yourself a survivor.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
wilckdds #80373 09-13-2008 06:26 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
"Everyday above ground is a good day" came from Scarface, one of my favorite movies also. Tony said it and I can't remember what scene he said it.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #80388 09-13-2008 08:39 PM
Joined: Aug 2008
Posts: 716
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Aug 2008
Posts: 716
Thanks Jerry.

Thanks David...Scarface...I was able to hear the voice but couldn't place it. What a great movie. I'm going to have to check out that new Deniro/Pacino flick.


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #80414 09-14-2008 01:04 PM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I'm a survivor right now too Ray as are most of us. I'm like you and have wondered about the WheN too. I know it was a few months before I was told I had OC, but how many would be a guess.. Good luck abd just keep on kickin the butt of this stuff.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #80592 09-17-2008 01:12 PM
Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
I'd say I started to think "survivor" when I was tald I was cancer free. Of course, like any 60 year old person, I've survived so many near catastrophies. I survived a tour in Viet Nam with the Marine Corps infantry, I survived an accident which left my torso, arms and face covered with burns, I survived a really stupid attempt to climb a cliff in the Big Sur River gorge all by myself, and now, cancer. I figure, after Viet Nam and the 58,000 Americans who died there, I have nothing to complain about whenever I do join them. I've had a lot of life that so many never had a chance at. Of course, I'm in no hurry there. I'm going to hang on to life and fight for every minute of it. And, continue to be a "survivor".


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.

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