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#78689 08-14-2008 10:56 AM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Echoing some posts in other topics, depression is a very real risk to those of us with oral cancer. I don't have any answers but if you are feeling blue, it seems that you have lots of company. Surfing Medscape I found these May 08 quotes from William M. Lydiatt, MD, professor and division chief, head and neck surgical oncology, at the University of Nebraska Medical Center, in Omaha,

"Depression in patients with head or neck cancer is among the highest � if not the highest � of all cancer patients", Dr. Lydiatt told Medscape Psychiatry. "I think that's because the cancers affect the most basic aspects of humanity; they may affect your facial appearance; they may affect your ability to eat, to speak, and to breathe; and this interferes with the most basic of activities."

In addition, the treatment itself � which can involve long and arduous radiation and/or chemotherapy sessions � may contribute to depressed mood, said Dr. Lydiatt.

He published a report in the May issue of the Archives of Otolaryngology � Head and Neck Surgery on prophylactic anti depressants but as Medscape noted: With only 23 patients in the study, its lack of statistical power is a main weakness.

My recommendation is daily use of the OCF Forum - which unlike anti depressants has no known bad side effects. laugh


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #78695 08-14-2008 01:04 PM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Charm, I want to thank you for posting this. It doesn't say anything about the personality change, but I'm sure we all know that. LOL I guess I was a Bear, Grizzly at that.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #78698 08-14-2008 01:56 PM
Joined: Aug 2008
Posts: 531
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Aug 2008
Posts: 531
I also would like to thank you for this post. I find it interesting on the day I am having one of my worst days with this whole situation yet. Just when I think I had things under control. Between the not smoking, the pending surgery and other treatments still unknown, I have been having some very very powerful thoughts and not wanting them there. Today I had the first person ever to basically say it's your own fault you have cancer you smoked didn't you. I was already having a bad day with those issues and then that. Most people are so kind. And as far as a daily dose of OCF it is true. I feel like I know a lot of you and that you are the only people who really understand what I am going through. I am really fighting hard to keep positive. Thank you all!!

Still struggling

Dianne


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
darkeyedlady0 #78700 08-14-2008 02:52 PM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
I have long said that the mental aspect of our cancer is at least 50% of our battle and none of us really need a Dr or a study to tell us what our side effects may be because we know those first hand. Some of us get lucky, like me, and require no surgery; have recovered almost totally in taste and dry mouth issues; have no speech or swallowing issues; and have no other side effects to remind me of my cancer fight. Others are left with the extremes in all those categories and the rest fall somewhere in between. But one thing that we should never loose sight of is that we still are the lucky ones since we are still alive. For that we need to forget the "why me's" and "I don't deserve this's" and think only positive thoughts. We should forget the past us and concentrate on the future and thank whoever you believe in that we are still alive and able to do the things that we are able to.

Everyday is a new and vibrant day and we should be ecstatic that we wake up and are a part of it. It's funny but in some ways I feel like my life is better because I got this cancer.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #78702 08-14-2008 04:02 PM
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Well said David. I can relate to a lot of what you have written.
Cheers
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #78787 08-15-2008 10:13 PM
Joined: Jun 2007
Posts: 10,507
Likes: 8
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 8

David, thanks for putting this into perspective. Whenever I start feeling down about my struggles with recovery, I try to think Im one of the lucky ones. The "why me" never got to me, it was the frustration of not returning to the old me that is most bothersome. Sometimes it takes reading a few posts here to remember how bad this cancer is and how lucky I am. Charm, thank you for posting this.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Charm2017 #78802 08-16-2008 06:51 AM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
It is I who should be thanking you (Jim, Christine & Dianne) as well as David, Brian, Gabe and all the posters here. You find what you are looking for and it wasn't a coincidence that I was searching for medical studies on depression. I have always been a "when Life gives you lemons, make a vodka tonic" type of guy (my old recipe: * 6 lemons
* 6 oranges
* 4 limes
* 1 large bottle Stolichnaya Citros (or other citrus-flavored vodka)
* Several bottles of tonic
* Ice )
but the diagnosis of Stage IV a year ago and the daily drudgery of radiation plus chemo reactions intensifying the burns was daunting. Like David, I was one of the lucky ones with no surgery or PEG as well as blessed with a wonderful wife as caregiver and a flexible workplace yet my feelings are more like a quote from a sci fi novel "city on fire":
"I am Wiser now, but it is the kind of Wisdom that can turn a man bitter. I do not know if I am better for having it". Each day is new, and I do try to celebrate it. I just wanted to share some "medical" validation that the "new normal" challenges us to resist depression, persist in enjoyment, smile at life's crap, and believe we can not only survive but thrive.
Everyone here deserves to pat themselves on the back for a job well done.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #78834 08-16-2008 04:21 PM
Joined: Aug 2008
Posts: 531
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Aug 2008
Posts: 531
There is another old adadge that goes something like what doesn't kill us makes us stronger.

From this site I have found a lot of strong people still hanging around doing wonderful things!!


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY

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