| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Just keep a supply of Aquafor on hand to pu on your mom's lips. They will get dry and bother her after she has had a couple of rads and don't be afraid to use it. I healed in 2 weeks after rads and chemo combo.But those lips sure did bother me for a few days.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2008 Posts: 7 Member | | Member
Joined: Apr 2008 Posts: 7 | Time for a new update. My mom has completed all but 3 radiation sessions. She has alot of pain on her tongue from sores, she has also lost her taste. Any recommendations on what might help her pain. She was offered liquid vicodin, but she didn't want to take it. She has seen people get addicted to pain pills, so i think she a afraid. I told her that she does not have an addictive personality so she should use it to get some relief, but so far she has not. She also wanted to know if anyone knows about know about going in cloranated water during and after radiation.
Thanks
Sherri
CG to mom, T4N0M0, Surgery to remove jaw and reconstruct with bone from leg
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 |
Sherri:
Right now and the next couple weeks are the worst time of your mom's treatments. She needs pain meds. Ask her doc for the fentanyl patch, its easy and will give her a constant flow of pain meds. There is no reason for her to suffer when pain meds are available.
I also was reluctant to take pain meds. I had a wonderful nurse who explained that there is no reason to hurt after going thru so much. It will help the body to heal by easing the pain so she can rest.
It will get better very soon. Best of luck to you both.
Christine
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I had to stop taking all my pain meds because of the complications they created with me and it wasn't fun so I hope she can find something that works for her. Tell her to stop worrying about the addiction chance and get the relief.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Sherri, I was hesitant to take pain meds too but I couldn't have gotten through the end of my tyreatment without them. If it's any reassurance to your mom, most research shows that if you're taking pain meds for cancer or cancer treatment pain, you aren't very likely to get addicted--you just want to get of of them ASAP!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | The only reason I quit taking pain meds is the constipation they gave me. I sometime think about taking a pain pill then get to thinking about the stomache cramps from them and back off. Tell her to take them if they are OK with her stomache.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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