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#54140 12-10-2003 03:57 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello All,
I finally got a call from my primary care doctor's nurse yesterday Dec 9. I had a pain in the right side of my chest when I tried to take a deep breath. It hurt like the dickens. On Dec 1st he took two chest x-rays and an EKG. He told me if things were normal he would mail me the results and if it was something to be concerned with they would call. The nurse said the chest x-ray showed Pneumonia on my right lung. Why would it take them 9 days to call me?? They now have me on anti-biotics for ten days. How do they know it's not a reoccurance of the cancer? I don't trust the medical profession much anymore.
Daniel
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#54141 12-10-2003 05:01 AM | Joined: Sep 2003 Posts: 37 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 37 | Hey Daniel, Sorry to hear...hope the antibiotics clear things up! I know exactly what you mean about the medical profession. Dan had an appointment at Hopkins about his PVL and they were no help at all...no studies for this rare disease. Dan also has a swollen gland and jaw pain, so he will be having a CAT scan tomorrow...we had to push a lot just to get another CAT scan and it's been 4 months since surgery. I keep thinking more cancer also, but I will pray for both Dan's that things clear up and no more cancer! Hang in there sweetie, God hears and cares! Deb 
Debbie/Caregiver/wife of Dan, diagosed with SCC tongue, Stage II/III, 1/3 tongue removal, lymph node dissection both sides of neck, skin graph 7/30/03. Left tumor found - radical left neck dissection 12/24/03. Could not get all of tumor/wrapped around carotid artery and in wall of jugular. 1/12/04 beginning of 6 doses of Taxol/Cistoplatin once a week, and rad 70 gray 5 days a week/6 weeks.
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#54142 12-10-2003 05:49 AM | Joined: Oct 2003 Posts: 49 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2003 Posts: 49 | Dan, don't let your mind play games with you, trust for the pnumonia and stay positive about being cancer free. Attitude is everything in this fight. I know how hard it is but we have no choice but to stay positive. Hang in there
5-02 SCC T1N1M0 Stage 3 Right Tonsil
6-02 Right Radical Neck Disection
9-03 Recurrent SCC Dx Stage 4 unknown prim
12-03 7 Chemo
12-03 36 Rad
5-04 Left Upper Lung Wedge Resection neg
7-04 Right Parotidectomy
9-04 Began IMRT
10-04 Ended IMRT
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