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#536 12-10-2002 11:12 AM
Joined: Sep 2002
Posts: 642
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Sep 2002
Posts: 642
The other day, while taking my almost daily walk ( Texas does have good winter weather most of the time), I felt a strange feeling run up into my thighs a couple of times. It felt sort of like a mild electric shock feeling or like a mild hit on your funnybone. I really did not give it much thought but then on an MD Anderson board I saw that a woman wrote in that she had experienced it, especially if she jogged or power walked, and her oncologist explained that it is yet another sid effect of radiation treatment.
Have any of you experienced this strange phenomena?

Danny G.


Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
#537 12-10-2002 12:39 PM
Joined: Mar 2002
Posts: 1,140
Likes: 1
Patient Advocate (1000+ posts)
Patient Advocate (1000+ posts)

Joined: Mar 2002
Posts: 1,140
Likes: 1
Yes, Danny, I get it when out running, and Dinah has it too. It is triggered by bending the head forward, however slightly. So don't look down (grin). Dinah's radiologist told her about 5% of patients get this. She and I have the 5% Club and you may join if you wish. Her doc also said it sometimes goes away, and I do think mine is fading somewhat. Bottom line, do not worry, this is not a bad thing, just a part of your New Normal.
Joanna

Edited to add that if I lower my head v-e-r-y slowly, it doesn't happen.

#538 12-10-2002 04:38 PM
Joined: Aug 2002
Posts: 246
Platinum Member (200+ posts)
Platinum Member (200+ posts)

Joined: Aug 2002
Posts: 246
Gives new meaning to "heads up". Well, you learn something new on this board every day and this is it for today.

Danny-lay off wearing cowboy hats...leave them to George W.-they add too much weight to your head.

Toodles,

K-


kcdc
Wife of Dave,diagnosed with Stage III Tonsillar SCC,August '02
Modified radical neck dissection followed by radiation therapy
'There is glory and radiance in the darkness and to see we have only to look"
#539 12-11-2002 01:07 AM
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Danny,

Welcome to the club...there is a name for this but it's way to medical for me. The radiation oncologist (who the ENT oncologist defered to) said I could go on steroids to help. NOT!!!

Seems this appears a month or two after radiation. And does fade in time.

Take Care and "keep your chin up" Pun intended!
Dinah


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