#42800 10-18-2003 11:26 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hi Friends,
I don't know if I should say anything about my radiation treatment because after 19 treatments I haven't had any bad side effects yet! I only have 11 treatments left. I am having IMRT so I think that makes a difference. I had a minor sore throat last week but this week I hardly notice it. Makes me wonder if their doing it right. I was expecting all the bad things I read about for the last three months. I have gained back all the weight I lost after the surgery almost 30 lbs. I started out around 150 got down to 121 after the surgery and am back to 148 now. I am inputting 8 to 10 cans of jevity with carnation instant milk mixed in along with weight gainer fron GNC. I also input Gatorade & water four times per day which equal 1000cc. The only negative thing is I'm not yet eating anything through my mouth. I thought I will start eating after the radiation is finished. I am keeping my fingers crossed that all continues to go well. Your friend Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#42801 10-18-2003 01:54 PM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 153 | hi Dan,
Glad to hear you're doing well, stay with it. We are each different and respond as we might... you are on the last third now, so put it on cruise.
keep us posted,
cu,
larryb | | | 
#42802 10-19-2003 06:32 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Dan
Told you the positive waves were still beaming your way! Great to hear everything well so far will still keeping sending the waves!!!
Cheers
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#42803 10-19-2003 07:00 AM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | Dan,
Sounds great! I, like you, held up well during radiation and wondered if it was working. I'm just curious, have you been told to avoid oral intake until radiation ends or does it cause pain? I know there are mixed opinions on this issue but I always felt that I got back to "normal" eating fast because I ate through the entire process. This would be my non-clinically supported atrophy theory. It is an eat if you can concept. Can you?
Glenn | | |
#42804 10-20-2003 02:45 AM | Joined: Sep 2003 Posts: 37 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 37 | Hey Dan,
So glad to hear that all is going well. I have wondered how you are doing. Sounds like it's all under good control and I will continue to pray for you and your family. Dan is also doing well, will have a biopsy done hopefully next week to check out a "spot" on his tongue further back in the gag reflex. He is feeling well and back to work. Praise God!
Take care!
Deb
Debbie/Caregiver/wife of Dan, diagosed with SCC tongue, Stage II/III, 1/3 tongue removal, lymph node dissection both sides of neck, skin graph 7/30/03. Left tumor found - radical left neck dissection 12/24/03. Could not get all of tumor/wrapped around carotid artery and in wall of jugular. 1/12/04 beginning of 6 doses of Taxol/Cistoplatin once a week, and rad 70 gray 5 days a week/6 weeks.
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