#41681 08-30-2007 04:17 AM | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Has the PEG tube ever been loosened? Mine hurt quite a bit until the doctor finally loosened it.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
#41682 09-05-2007 04:29 PM | Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2006 Posts: 147 | Lois,
My husband had the PEG and never did get relief. He was always in pain. He kept it for (3) weeks and then had it removed, against Dr.'s orders. Keep increasing the pain medication which has a tendency to constipate you. Keep the bm's going or else it will cause him to be nauseated, which seems like a never ending cycle. Finally, when it was removed, it was determined it was wayyyy toooo tight - Jim WAS a fleshy kind of guy and they expected him to lose a lot of weight and that the PEG would loosen up. Well, it didn't and it was horrific. After the PEG was removed (against Dr.'s orders), but he is very headstrong and determined. His wound would not heal and kept leaking and having a lot of infection...couldn't figure it out between his oncologist/radiation Dr. and general Dr. Finally, they were sending him to a wound care specialist and Jim got desperate the day before the appointment and really started "digging" into the hole that was left from the tube.....well, he pulled out about an 1 1/2 inch piece of a stitch that was used to hold the tube in...he refused to go to the wound care Dr. and 2 days later his tummy was closed and ceased draining. He is doing fine now. He finished Radiation 2/14/07, cleared his tummy up from the PEG in June and is beginning to gain weight, get his saliva glands back.
Hang in there....Jim (my hubby) assures me that this is harder on the care givers. It was devastating for us as we married 2 weeks after he was diagnosed. Things are going great - this website kept me going as I am always reading it, not talking much, but definately on it....just remember, the Dr.'s are doing the best they can, but we each know our own bodies the best. Just listen to it and keep asking qustions!
Good Luck!
Paula and Jim
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009
Lost the battle November 23, 2010
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