#35554 10-04-2007 05:50 AM | Joined: Apr 2005 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 60 | After completing round #2 end of June with this horrible "thing" and all the complications in between, My DH had a PET scan just over one month ago results were promising but it was repeated on Friday. We got the results today, a previous "spot" on his lung was there but didn't flash, this time it said " Small less than 1cm nodular foci identified in BOTH lungs There is associated mild to moderate hypermetobolic assosiated with these findings, these appear increased in size since 8/8/07. Hypermetobolic activity associated with these findings is new since the prior study. Findings suggest progression of hypermetobolic pulmonary metastic disease since prior exam"
His ENT basicly shooed us out the door and said the cancer center will discuss this with us (appt tues).
We are devastated. We expected some positive news and got delt a huge blow. The river of tears has started again and not stopped since we got out of the Dr.s office.
What happens now? What to expect?
Thanks so much.
Sam and Richard
C/G to Husband Richard SCC Op 4/1/2005 T2N0M0,Neck disection, 35% of tongue removed.
Reoccurance 3/2007,Lymph Node same side Positive SCC, Swelled to 2.5 inches. IMRT X35 Cis X3 Completed 33 IMRT Cis x2 carbo X1 MET to lungs post treatment 10/04/2007
Passed peacefully 31st July 2008.
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#35555 10-04-2007 06:47 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Dear Sammie
my heartfelt best wishes go out to you and i know the next few days will seem like an eternity.
fingers crossed the news will not be as bad as you are thinking.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#35556 10-04-2007 07:45 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Sammie,
Get out this weekend, have a nice walk, a nice dinner, see a movie (theatre or DVD),buy yourselves a 'treat' each, remind yourselves you love each other.
Why not?????
Whatever the news, who knows what to expect? And does worrying make any difference??
I had a serious 'dose of the runs' today waiting for my appointment--I'm still an 'incurable' patient, but after all the bad news of the last 6 months, today's seems like good! Actually it's NOT!
But tonight, feeling lousy from flu bug thingy, sitting amongst chaos where we're trying to de-clutter and re-decorate revolving round work and my appointments, I made time to just crawl onto partner's knee and tell him I love him and appreciate all he's done for me.
Tonight, the house may be struck by lightning, Ray may have a crash on the way to work, either of us could die from a heart attack--we're that kind of age. And in my local paper, a 6 yr. old has died in 72 hours from Meningitis.
Just go have a nice weekend---it will NOT make any difference to Tuesday's outcome.
And my heart goes out to you--am thinking of you for Tuesday.
brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#35557 10-05-2007 09:13 AM | Joined: Apr 2005 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 60 | We will try and get through this week-end,Richard is devastated to say the least, he keeps saying he did everything he was told to do..........
Will update monday.
Sammie
C/G to Husband Richard SCC Op 4/1/2005 T2N0M0,Neck disection, 35% of tongue removed.
Reoccurance 3/2007,Lymph Node same side Positive SCC, Swelled to 2.5 inches. IMRT X35 Cis X3 Completed 33 IMRT Cis x2 carbo X1 MET to lungs post treatment 10/04/2007
Passed peacefully 31st July 2008.
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#35558 10-25-2007 06:34 PM | Joined: Apr 2005 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 60 | Sorry I have not updated,,,,,, but we were in shock. We were told Oct 9th that Richard is Terminal and that he should start chemo again 3 days on 3 weeks off. He has completed his first treatment but ended up in the hospital due to low blood counts fever etc.He is still there now. I also had to tell our youngest (11 years old) that she could lose her daddy. That was the hardest thing I ever had to do.
Richard is fighting though with every ounce his has left. He is one brave man.
C/G to Husband Richard SCC Op 4/1/2005 T2N0M0,Neck disection, 35% of tongue removed.
Reoccurance 3/2007,Lymph Node same side Positive SCC, Swelled to 2.5 inches. IMRT X35 Cis X3 Completed 33 IMRT Cis x2 carbo X1 MET to lungs post treatment 10/04/2007
Passed peacefully 31st July 2008.
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#35559 10-26-2007 02:32 AM | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Sammie,
I know you are just stunned and wondering how, after all you have gone thru, that this thing has again taken over. I am so sorry and that is all I can offer you, other than a little prayer for your family right now. Please know that the OCF crew is here to give you and Richard strength in this new journey...Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
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#35560 10-26-2007 06:17 PM | Joined: Jul 2007 Posts: 211 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2007 Posts: 211 | Sammie,
I am thinking of you and Richard. I am so sorry that you are going through this after all you have already gone through.
Sophie
Sophie T.
CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+
induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
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#35561 10-27-2007 02:53 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Sammie, My thoguhts are with you and Richard. I can only imagine how devastating news like that is.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#35562 10-27-2007 07:22 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Here i am in Hampshire on Robins 45th birthday and the first one without him,and i have just read the news.
Sammie what can i say.Just that in this instance i do know what you are going through,and if i can help just get in touch honey.
Robins brother and his daughter and i are going to a memorial service in the village church this evening and i promise i will pray for you both to have the strength to get through this together.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#35563 10-28-2007 06:36 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Sammie,
Just hang in there!
To my utter surprise and disbelief, the chemo appears to have 'bought me some more time'---my doc says he won't give figures/numbers as he's invariably wrong, and I just take each day as it comes and celebrate it!
Please let us know how Richard is doing.
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#35564 10-29-2007 03:30 AM | Joined: Apr 2005 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 60 | Thanks all for the good wishes, We have decided to do the 3 months treatment then look at the PET results and see where we go from there. The Chemo made him very ill and hubby does not want to spend what time he has left in hospital with Chemo Side effects and not being able to hold any nutrition down. We are hoping though it wont be as bad next session. I have also asked him if he wants to go "home" (UK) but he wants to stay here says he prefers palm tree's to rain anyday! Its a blessing we have time to make plans, many people don't get that.
Take care for now
Sammie & Richard
C/G to Husband Richard SCC Op 4/1/2005 T2N0M0,Neck disection, 35% of tongue removed.
Reoccurance 3/2007,Lymph Node same side Positive SCC, Swelled to 2.5 inches. IMRT X35 Cis X3 Completed 33 IMRT Cis x2 carbo X1 MET to lungs post treatment 10/04/2007
Passed peacefully 31st July 2008.
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#35565 10-29-2007 07:56 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Dear sammie
The time robin and i had was very short but the most precious of our lives.
Dont waste a minute of it ,and most of all say everything you have in your hearts.The next weeks and months will be the foundation of your memories that will be a great comfort to you in the future.
my love and prayers
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#35566 10-30-2007 11:42 AM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Dear Sammie and Richard,Palm trees and warm sunshine are a good choice. Wishing you strength. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#35567 10-30-2007 11:45 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Warm sunshine for me in November??? Is it possible and better than UK lousy???
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Apr 2005 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 60 | Hi All, Since my last post it has been a very rough ride. DH has not been able to tolerate any sort of chemo, his bloods kept crashing to near fatal on 2 occasions, so his doc tried different things same results, he was in hospital so much he joked about changing his address to theirs. He is now on Erbitux (sp?) that seems to be okay, just vomiting day after treatment, but it passes, will have another pet in 4 weeks time to see what the progression is (hoping none!) Take care of yourselves Sammie + a sleeping Rich!
C/G to Husband Richard SCC Op 4/1/2005 T2N0M0,Neck disection, 35% of tongue removed.
Reoccurance 3/2007,Lymph Node same side Positive SCC, Swelled to 2.5 inches. IMRT X35 Cis X3 Completed 33 IMRT Cis x2 carbo X1 MET to lungs post treatment 10/04/2007
Passed peacefully 31st July 2008.
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | So sorry you and your hubby have been going though so much. We will keep you in our thoughts.
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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