#24175 08-28-2007 07:49 PM | Joined: Aug 2007 Posts: 6 Member | OP Member Joined: Aug 2007 Posts: 6 | Hello, My name is Charity, I am Minnie's oldest daughter. I met some of you at the walk mom organized in Virginia Beach and enjoyed it very much. As some of you have read, mom's was diagnosed again today with cancer in her tongue, stage 2. Her cat scan showed it may be in one lymph node, but we will know more after exploratory surgery Wednesday. I know how much this board has helped my mother over the last 4 years, and I hope it can do the same for me and my sisters. I will have a lot of questions before and after her surgery, and especially during her recovery. I hope you all can bear with me and help me to help my mother. She is the bravest and strongest woman I know. As much as she does for others, it's time for her to let us help her. Thank you all!! Charity | | |
#24176 08-28-2007 08:23 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Charity,anything you need just ask.We have all received the benefit of your mothers wise and loving care and i am sure i speak for everyone on the forum when i say that we will be with you every step of the way.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#24177 08-28-2007 09:22 PM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | Welcome Charity, what a lovely name! We're all thinking of your mother and wish that the diagnosis had been different. I hope you get the answers or just the company you need here.
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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#24178 08-29-2007 01:42 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Welcome Charity, Whatever we can do, and however we can help, please just ask. As Liz said, your mother has helped many of us when we were in low moments.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#24179 08-29-2007 02:04 AM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Jul 2006 Posts: 446 | Hi Charity, I've taken much advice from your Mom, and I know how strong she is. She will fight this beast again, although we'd all hoped she wouldn't have to. We're here for you, and her. Please become a regular reader, and participant. What the Doctor's can do is amazing; what this Board can do, even more so Welcome! Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#24180 08-29-2007 02:22 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Hi Charity, I adore your mom, as does everyone here. I'm sorry she's having to go through this all again. I know how this "family" embraces everyone who enters through this door, here at OCF. You will find everything you need here, I know how they have all saved me from going insane and the fears...your mom being one of them. She and all of you are in my thoughts. Give her my love. Donna
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#24181 08-30-2007 06:29 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | Charity ,
Anything you need...and you are right your mom is a strong and courageous woman..and has helped me so many times. I had a partial glossectomy and I will answer or DO whatever I can .. I Am soo sorry for you all .
shar
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#24182 08-30-2007 07:52 PM | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | Charity, Welcome!! It is wonderful for me to see in you the same strength I've seen in your mother. I only wish I was posting this under better circumstances. You and your mother and the rest of your family have my prayers and thoughts occupied for a speedy recovery. I have only been around this site for a short time but, there is not a warmer welcome and resource for advice that compares to OCF. If you have any thoughts, questions, concerns, or just want to vent please don't be afraid to post here. Minni has been a fountain of advice and support for all who visit. We owe her the same in return. Charity, be strong for your mother, tell her you love her, and tell her how wonderful she is.
If you have any questions e-mail me anytime.
We are all thinking and saying our prayers for Minni and her family.
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
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#24183 08-31-2007 12:44 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Hello Charity, what an awesome name! I met you at the Virginia OCF Walk....your Mom has helped me and continues to help me...she is an amazing woman as you well know....we are here for you and your sisters. I live in Baltimore, so if you need me on the Hopkins trip, just give me a shout, I will pm my # to your Mom.....Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#24184 08-31-2007 04:11 AM | Joined: Apr 2007 Posts: 131 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Apr 2007 Posts: 131 | Hi, Strength in numbers, think positive, our prayers are with you and your family. Carol Ann.
Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
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#24185 08-31-2007 05:52 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hi Charity, Everyone is here to help you, your mom and your family get through this again. We are so sorry she has to fight this beast again.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#24186 08-31-2007 06:06 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | Charity Ask away, someone on the board will have been there before and should be able to help. Please e-mail if you need to vent, your Mom helped sort me out when I had my tracie. Sunshine.. love and hugs Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#24187 08-31-2007 11:47 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: Dec 2003 Posts: 528 | Hello Charity Your mother has inspired OCF members all around the world. Positive thoughts are being focussed on Va Beach. We are all here for you and your family. Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#24188 08-31-2007 12:02 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Charity, we are heartsick, as your family is, that Minnie and your family have to fight this again. You can surely tell from the above how much she is loved and admired. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#24189 08-31-2007 03:40 PM | Joined: Aug 2007 Posts: 6 Member | OP Member Joined: Aug 2007 Posts: 6 | I can't tell you how much it means to all of us that there are so many people here that are praying for our family and willing to answer questions!! And as for venting, I feel that coming soon, lol. Thank you all so much, I can't think of anyone who could make me feel better then I know you will! xoxo Charity | | |
#24190 09-03-2007 03:48 AM | Joined: Jan 2006 Posts: 107 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2006 Posts: 107 | Hello charity, I am so sorry to hear that your mom has to battle this beast again. I cannot tell you how much your mom has been an inspiration to me, her courage, strength and wisdom will get her through. I am sure of that. There were times when her encouragement and support were unsurpassed. She is the best, she is the coolest. Lenny | | |
#24191 09-04-2007 01:07 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2006 Posts: 378 | Hi Charity, Your Mom has been such a great support for so many of us on this forum I hope that we can begin to repay her kindness. Vent away, it helps. Our thoughts will be with all of you this week. Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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