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Joined: Jul 2022
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ABgray Offline OP
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Joined: Jul 2022
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Hi,
New here, I’m desperate to help my mother in law, an amazing person, she’s about 7 months post radiation from oral cancer radiation, and she still can’t eat solids and her mouth is consistently in pain and with sores that won’t go away. She’s tried a lot, doctors have given her a lot of rinses etc but nothing has helped, her Louth isn’t petty much (per doctors) like if she had just had radiation. Has anyone found anything that helps? Please I’m desperate to help her.


Trying to connect with those who recovered from radiation oral issues
Joined: Jun 2022
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Hello, and welcome.
I can really sympathize with your mother-in-law...
Mouth sores are one of the worst side effects of oral cancer treatments.
Has her Doctor suggested temporary intravenous (PEG) tube feeding?
P.E.G. is short for Percutaneous Endoscopic Gastrostomy..
I too suffered from pain due to chronic mouth sores and ulcers after treatments...and rinses didn't seem to help
...and l tried them all..!!!
Intravenous feeding was often suggested...but stubborn me kept refusing...
However, after a couple of months of being constantly hungry & loseing weight..l reluctantly had a tube inserted and used it for about a year..
When my mouth healed enough to where l was able to force down smoothies & shakes..l ditched the tube.(hated it).
However, it did help me maintain a decent weight, and energy level during that year..which is imperative..

Send my best wishes to your MIL ...and tell her to keep persevering...

Good Luck. !!

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Hello, I appreciate the way you're trying to help your Mother in Law. I too suffered from radiation burns on my tongue and mouth. My tongue cancer surgery was in 2018 and I'm over 2 years post radiation. During my recovery, I lost 36 lbs and was threatened with a feeding tube if I lost more. The open sores on my tongue eventually went away but my tongue is still very sensitive, and I have a very restricted diet because so many foods burn my tongue and mouth. I have been told this may not get better. I sincerely hope for a better outcome for your mother in law.

I recently changed to a new dentist and she recommended a mouthwash called Stellalife. I purchased it on Amazon. They have a coconut flavor which was good for me as I cannot tolerate mint at all. I have just recently started using it so cannot report any results other than it's good to have a mouth product that is not mint flavored. I eventually found a toothpaste that is unflavored and that still has fluoride. It's called Bob's children's toothpaste (also on Amazon).

All I can suggest at this time is that she take her radiation oncologist's advice. I was told to use a baking soda and salt rinse. I was given a liquid lidocaine as well as Swish and Swallow to help numb my mouth and throat. I also wore a Fentanyl patch during the worst time. Best wishes for her. The sores will eventually go away and the memory will dim. Just writing this reminds me of how far I've come.

1 member likes this: Brian Hill

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