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#201335 05-01-2022 04:28 PM
Joined: May 2022
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I read online that the Oral Cancer Foundation also has patient support activities. I did not find a thread or forum for that. Is there one? What activities do you provide? Do you have a virtual zoom meeting once a month as some other places do?


dan castle
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
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Most of the foundations support activities are different than what you are thinking. They are related to seeing patients get referrals into facilities, helping them understand and define their treatment choices, getting the equipment necessary to blend foods properly for PEG feeding at no charge if they have a financial disparity, working with the insurance industry to cover more that they do not now. But we are not engaged in virtual support groups, we just answer questions and offer help here. If you need face to face counseling perhaps your treatment facility has a group of individual sessions you can be part of.

This is the oldest oral head and neck support group there is. It is the only one that is anonymous, where your identities are prevented from being known by anyone, and your information not sold or shared with anyone else.

Virtual groups only work in small numbers of people if they are going to actually interact with someone else. This model was not built to do small groups.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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