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Joined: Oct 2021
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Joined: Oct 2021
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I was just diagnosed with oral squamous cell carcinoma and will be having a mandibulectomy with fibula free flap surgery Nov. 15. What should I expect? Please share your experience. Did it affect your speech, eating, swallowing etc.? What was the pain like? When do you start feeling normal again? Will I ever enjoy food again? What's it like to have your cheek and jaw reconstructed? And how does it look?


Kimmybgood
Joined: Sep 2007
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Joined: Sep 2007
Posts: 57
I had my right side jaw done in 2010, it was rough for me. Plan a good 5 months of healing after it and just take each day as it comes. They took the bone out the left leg and the vein and rebuilt the right side. The surgery is around 12 to 14 hours, 7 to 10 days in the hospital, you could be off the feeding tubes in 2 to 3 week. I was on the feeding tube for 4 months as I had a hard time eating again. Plus you will have a trach in for a few days. Just follow the orders and you will do great.

I will be going back through this 13DEC, my 4th round is back and this time it front jaw and part of the left needs to come out.


Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.

Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
Joined: Oct 2021
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Thank you for such a helpful reply. It helps to know realistically what to expect. My surgeon kind of described things in broad terms and made it sound not so bad. Today I saw my nurse navigator who told a very different story about the extent of the surgery. I came away a little gobsmacked but I think the surgeon just underplayed it because his perspective is what HE has to do. What you said is more in line with what the nurse told me. And I am so sorry your cancer is back and you have to go through it all again. I wish for you strength, peace and love.


Kimmybgood

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