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Joined: Feb 2013
Posts: 51
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Feb 2013
Posts: 51
Good Evening Friends!
It has been almost three years since my last surgery (Partial Palatectomy) and I have been experiencing a lot of food leaking into my nasal cavity when I eat. I have only 6 teeth in the left upper jaw and all other upper teeth have been removed due to the initial and recurrent tumors in the gum tissue of the right upper jaw. I have done pretty well with eating enough solid food to stay healthy, but the issue of food in my nasal cavity makes eating with others very difficult. I can not have the flap surgery to close my palate as the prosthodontist says he can not make a prosthesis with teeth if the flap is installed. I am grateful to be living a full life in spite of this 11 year cancer journey, but if there is a prosthodontist out there that can help with my complicated situation, I would love the name and location!
Thank you!


Teacher Karen
DX: SCC of right maxillary alveolar ridge, 9/2010.
Surgery 11/2010, removal of 4 teeth and gum.
Surgery 11/2012, removal of 3 teeth and gum.
IMRT 1/2013-2/2013
Surgery 1/2015 retromolar trigone resection; removal of 1 tooth and gum.
Surgery 10/2015 left modified radical neck dissection, inferior parotidectomy, external carotid artery resection.
Cetuximab based chemoradiation 64.8 Gy to resection bed.
Surgery 6/19/2018 Right inferior maxillectomy, bilateral low palate resection
Joined: Aug 2018
Posts: 333
Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Aug 2018
Posts: 333
I was on faculty in an Orthodontic Dept at a Dental School. We used to make obturators for newborns with cleft palates. You could try calling a dental school if you are near one and see if you can get one made there or get a recommendation.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
Joined: Feb 2013
Posts: 51
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Feb 2013
Posts: 51
Thank you Connie for your reply! That is a good suggestion and I appreciate you sharing your experience. Hope all is well with your husband!
Karen


Teacher Karen
DX: SCC of right maxillary alveolar ridge, 9/2010.
Surgery 11/2010, removal of 4 teeth and gum.
Surgery 11/2012, removal of 3 teeth and gum.
IMRT 1/2013-2/2013
Surgery 1/2015 retromolar trigone resection; removal of 1 tooth and gum.
Surgery 10/2015 left modified radical neck dissection, inferior parotidectomy, external carotid artery resection.
Cetuximab based chemoradiation 64.8 Gy to resection bed.
Surgery 6/19/2018 Right inferior maxillectomy, bilateral low palate resection

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