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Joined: Jul 2020
Posts: 2
zzhallk Offline OP
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Joined: Jul 2020
Posts: 2
Hiya. Apols if this has been covered but brand new and need advice asap. Have had hemiglossectomy and neck dissection for stage 3 SCC tongue. MDT recommend radio and cisplatin x 6 weeks. I'm in the UK, aged 41. Started to look online and seems proton beam is fairly standard in the US...it's available via 1 private company in the UK who have links with Pennsylvia. Not sure whether to go for it...I know the pros but there's limited evidence all in all...but then that's the case for a lot of cancer stuff and it looks like the direction of travel. Anyone any thoughts? Am canvassing medical opinion in UK too.

Joined: Aug 2018
Posts: 345
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Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Aug 2018
Posts: 345
Likes: 8
my husband had proton therapy for his second round of cancer. he will have tests next month to see if it was effective.

It is not widely used in the US and it's hard to get insurance to pay for it. He went to Mayo clinic.

best wishes


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free

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