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Re: New Forum for long term survivorship issues [Re: Brian Hill] #190709
09-10-2015 06:12 PM
09-10-2015 06:12 PM
Joined: Apr 2006
Posts: 583
Washington
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DM32ASA Offline
"Above & Beyond" Member (500+ posts)
DM32ASA  Offline
"Above & Beyond" Member (500+ posts)
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Joined: Apr 2006
Posts: 583
Washington
Well, I am back. Surgery went Ok, but still healing. What little neck tissue I had is now gone. I had other teeth removed end of April to make way for denture plate. Now left side is not healing from that.. may have to go and have bone scraped and go back into the HBO chamber.. I keep hoping his nightmare will end.. I guess not!! The thought of a 2nd Jaw surgery is really pushing me over the top.

Jewells, I feel the frustration you are going through. This is not a fun game. For myself I can only take one step at a time. Give him a hug, cry with him & go to the next step. smile


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
Re: New Forum for long term survivorship issues [Re: Brian Hill] #190711
09-10-2015 07:16 PM
09-10-2015 07:16 PM
Joined: Jun 2007
Posts: 10,481
PA
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ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 10,481
PA
Thanks for posting your update. Its been a while and I had hoped everything was well.

Ive been thru the scraping of the bone and its really not that bad. I chose to stay awake and just get a local for the procedure. It took maybe 2 minutes at the very most for the oral surgeon to scrap the bone and put a couple stitches in. Honestly it was one of the easier procedures Ive been thru. I would rather do the bone scraping than HBO any day.

Hang in there, you are past the worst of it.



PS... I moved Jewells original post over to a new thread in the Introduce Yourself section if you want to leave a reply for her.




Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: New Forum for long term survivorship issues [Re: Brian Hill] #200225
06-25-2020 11:11 PM
06-25-2020 11:11 PM
Joined: Jun 2020
Posts: 1
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carolyn1955 Offline
Member
carolyn1955  Offline
Member
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Joined: Jun 2020
Posts: 1
My husband of 14 years post treatment. Has been having problems controlling his blood pressure. Did you ever find any solution?

Re: New Forum for long term survivorship issues [Re: carolyn1955] #200226
06-26-2020 06:24 AM
06-26-2020 06:24 AM
Joined: Oct 2012
Posts: 1,207
Toronto, Canada
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gmcraft Offline
Assistant Admin
gmcraft  Offline
Assistant Admin
Patient Advocate (1000+ posts)
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Joined: Oct 2012
Posts: 1,207
Toronto, Canada
Carolyn,

Welcome to the forum. You have posted on a really old thread and it’s likely the person your post is meant for will not see it. To get some response to your question, maybe you would like to re-post under the thread ”Introduce Yourself” and include some information about your husband’s diagnosis and treatment. Hopefully, someone will be able to respond.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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