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Here i go #199976
03-24-2020 10:37 PM
03-24-2020 10:37 PM
Joined: Jan 2020
Posts: 50
Los Angeles, ca
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Kevster Offline OP
Supporting Member (50+ posts)
Kevster  Offline OP
Supporting Member (50+ posts)
K

Joined: Jan 2020
Posts: 50
Los Angeles, ca
First radiation treatment tomorrow (side of tongue and both sides of neck). Six weeks.Have read a lot of people’s experiences here, and I know that everyone’s body responds differently - the unpredictability is annoying. Anyways, just wanted to say how helpful I find this forum to be, how kind everyone is, and what a great source of advice Christine has been. No choice but to plow ahead and remind myself that in a coupe of months it will be over with. I’ve been very lucky to have avoided a flap in surgery, to have avoided chemo, and to have a good prognosis, so trying to be thankful and appreciative also.


Stage 3 cancer of right side of tongue
Tumor: t2.
Lymph nose spread
Partial glossectomy and neck dissection (2/12/20)
Never smoker
Completed six weeks of radiation on 5/6/20
Re: Here i go [Re: Kevster] #199981
03-25-2020 08:29 AM
03-25-2020 08:29 AM
Joined: Feb 2020
Posts: 34
Michigan, United States of Ame...
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DavidUofMsavedMe Offline
Contributing Member (25+ posts)
DavidUofMsavedMe  Offline
Contributing Member (25+ posts)
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Joined: Feb 2020
Posts: 34
Michigan, United States of Ame...
Keep that positive attitude & you got this. Yes, there will be pain and discomfort. Keep your Oncologist informed (I met with mine once per week) throughout your treatment, as they can prescribe everything you'll need to get through. Before long, you'll be ringing that bell and on your way to recovery. Try your hardest to maintain a steady intake of fluids and calories everyday. Eat what you want while you can.

Last edited by DavidUofMsavedMe; 03-25-2020 08:32 AM.

The number of people involved in my care (@ a CCC) is humbling. Doctors, nurses, therapists, support staff, & of course, family. With everyone fighting for me to beat cancer the least I can do is fight back and win!
Re: Here i go [Re: DavidUofMsavedMe] #199987
03-25-2020 10:36 PM
03-25-2020 10:36 PM
Joined: Jan 2020
Posts: 50
Los Angeles, ca
K
Kevster Offline OP
Supporting Member (50+ posts)
Kevster  Offline OP
Supporting Member (50+ posts)
K

Joined: Jan 2020
Posts: 50
Los Angeles, ca
Thanks for the reply. Good to hear from people who have been through it


Stage 3 cancer of right side of tongue
Tumor: t2.
Lymph nose spread
Partial glossectomy and neck dissection (2/12/20)
Never smoker
Completed six weeks of radiation on 5/6/20
Re: Here i go [Re: Kevster] #200061
04-15-2020 09:19 PM
04-15-2020 09:19 PM
Joined: Jan 2020
Posts: 50
Los Angeles, ca
K
Kevster Offline OP
Supporting Member (50+ posts)
Kevster  Offline OP
Supporting Member (50+ posts)
K

Joined: Jan 2020
Posts: 50
Los Angeles, ca
Halfway mark comes tomorrow and things seem to be looking up. Sudden swelling of the back of tongue had been causing excruciating pain every time i swallowed as the tongue scrapes the sores on the roof of the mouth back there every time I swallow. But swelling has gone down a lot since I took oral steroid treatment. And finally got right painkillers. Three times a day I take the magic mouthwash and guzzle high calorie shakes. My taste - at least sweetness - has not faded much, which has made me lucky. Hope the luck lasts! I was super fortunate not to need chemo. Thanks to all on the forum.


Stage 3 cancer of right side of tongue
Tumor: t2.
Lymph nose spread
Partial glossectomy and neck dissection (2/12/20)
Never smoker
Completed six weeks of radiation on 5/6/20
Re: Here i go [Re: Kevster] #200063
04-16-2020 12:30 PM
04-16-2020 12:30 PM
Joined: Feb 2020
Posts: 4
Yorba Linda, CA
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CynthiaD Offline
Member
CynthiaD  Offline
Member
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Joined: Feb 2020
Posts: 4
Yorba Linda, CA
My boyfriend is about where you are with radiation -- 3 weeks at the end of this week. He is in agony. His tongue is swollen and very painful. I am wondering what kind of oral steroids you are taking?

He is taking 7 gabopentin pills a day for pain, but he still seems to be in a lot of pain. He is also very tired all the time, which I am attributing to the gabo (but don't really know).

I am frustrated that he seems not to be getting a lot of attention from his doctors. His radiologist calls once a week but does not suggest anything.


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