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Depression/anxiety #199609
12-16-2019 06:34 PM
12-16-2019 06:34 PM
Joined: Sep 2019
Posts: 22
Rochester Y
A
ArdenDD Offline OP
Member
ArdenDD  Offline OP
Member
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Joined: Sep 2019
Posts: 22
Rochester Y
Hi everyone—as I re-read your posts, I am reminded of how helpful this forum is. My husband is now 16 weeks post treatment and making slow but steady progress. His clinical team is pushing him to transition off the PEG tube and while he recognizes the importance of it, he is anxious about trying different foods and due to tastes, dry mouth and lingering mucous, is assuming he will never enjoy eating again. I am trying my best to be supportive, suggesting that while he may be subject to a new normal, we can be grateful for a clean PET scan. I am meditating to help me to help him.

I know you’ve all been through this; thanks for understanding!
Nedra


Spouse of patient 7 weeks post radiation as of 9/30/19
Re: Depression/anxiety [Re: ArdenDD] #199614
12-17-2019 07:13 PM
12-17-2019 07:13 PM
Joined: Aug 2018
Posts: 318
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ConnieT Online
Platinum Member (300+ posts)
ConnieT  Online
Platinum Member (300+ posts)
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Joined: Aug 2018
Posts: 318
my husband has been away from treatments a little over a year. no one would know he had stage 4a oral cancer. he eats anything he wants, his voice is back to normal, etc. there is hope ahead.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
Re: Depression/anxiety [Re: ConnieT] #199648
12-30-2019 06:19 PM
12-30-2019 06:19 PM
Joined: Sep 2019
Posts: 22
Rochester Y
A
ArdenDD Offline OP
Member
ArdenDD  Offline OP
Member
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Joined: Sep 2019
Posts: 22
Rochester Y
Hi Connie—do you recall how long it was before the mucous stopped (or greatly reduced), saliva production increased and taste buds regenerated?

Thanks,
Nedra


Spouse of patient 7 weeks post radiation as of 9/30/19
Re: Depression/anxiety [Re: ArdenDD] #199649
12-30-2019 07:47 PM
12-30-2019 07:47 PM
Joined: Aug 2018
Posts: 318
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ConnieT Online
Platinum Member (300+ posts)
ConnieT  Online
Platinum Member (300+ posts)
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Joined: Aug 2018
Posts: 318
I don't remember for sure but maybe a few months on the saliva. Taste buds were never much of an issue for him. He couldn't eat spicy for awhile but can now. Sweet things don't always taste right to him unless it's something highly sweet. He bought a big jar of strawberry jam....said it didn't taste right. so i guess it's hit or miss.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy

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