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Foaming Saliva #199360
11-01-2019 04:34 AM
11-01-2019 04:34 AM
Joined: Jun 2019
Posts: 111
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Dizz_zzey Offline OP
"OCF across the pond"
Dizz_zzey  Offline OP
"OCF across the pond"
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Joined: Jun 2019
Posts: 111
I have finished radiotheraphy treatment. Whoop whoop.
For the last few days, my saliva is foamy. I think it's because I swallow it before being able to clear it, but when I have a drink (whether orally or through the G-tube) my saliva foams up at the back of my throat making it hard to clear. I have huge sores at the back of my throat making swalllowing difficult.
I am using the baking soda/salt water rinse but I haven't been able to do it 4 times a day on top of the different physios I'm doing, mouth excercises, sleeping, eating, meds and obviously the 5 hour trips to and from hospital.

At night I can feel the mucus rattle in my stomach (grim) and last night I put some water through my g-tube and 5 minutes later I threw up loads of mucus with the water. It was awful.

During the day, when it builds up, I sound like I'm snoring and all I can do is swallow this foamy mass. I regularly gargle and rinse my mouth out. Any ideas?

Last edited by Dizz_zzey; 11-01-2019 04:36 AM.

F 39 x-smoker, rare drink
T4aN1/N2bM0 SCC L lateral tongue &10mm into R
Diagnosed May 20th '19
Pembro trial 5th July '19 2 doses pre-surg 15 post surg
R.I.G fitted 9th Aug '19
Surgery 13th Aug '19 subtotal glossectomy neck dissection RFFR
33 doses RT Start 17th Sept '19
2x cispltin
Re: Foaming Saliva [Re: Dizz_zzey] #199361
11-01-2019 07:24 AM
11-01-2019 07:24 AM
Joined: Oct 2012
Posts: 1,151
Toronto, Canada
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gmcraft Online
Assistant Admin
gmcraft  Online
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Joined: Oct 2012
Posts: 1,151
Toronto, Canada
Good job, finishing your radiation treatment!

The mucous probably won’t last very long before the dry mouth sets I . Do what you can for now, it sounds like you’re doing the right things.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Re: Foaming Saliva [Re: gmcraft] #199362
11-01-2019 07:45 AM
11-01-2019 07:45 AM
Joined: Jun 2019
Posts: 111
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Dizz_zzey Offline OP
"OCF across the pond"
Dizz_zzey  Offline OP
"OCF across the pond"
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Joined: Jun 2019
Posts: 111

I'm not sure which will be worse. Foamy, snoring sore mouth, or the dry mouth stage. Any recommendations on how to maintain moisture? or is it a case of just for me to keep sipping throughout the day?


F 39 x-smoker, rare drink
T4aN1/N2bM0 SCC L lateral tongue &10mm into R
Diagnosed May 20th '19
Pembro trial 5th July '19 2 doses pre-surg 15 post surg
R.I.G fitted 9th Aug '19
Surgery 13th Aug '19 subtotal glossectomy neck dissection RFFR
33 doses RT Start 17th Sept '19
2x cispltin
Re: Foaming Saliva [Re: Dizz_zzey] #199364
11-02-2019 05:16 AM
11-02-2019 05:16 AM
Joined: Oct 2012
Posts: 1,151
Toronto, Canada
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gmcraft Online
Assistant Admin
gmcraft  Online
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Patient Advocate (1000+ posts)
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Joined: Oct 2012
Posts: 1,151
Toronto, Canada
The dry mouth is, I believe, bearable. You see in the hospital head and neck cancer patients carrying a bottle of water around with them. You will need to pay e tea attention to your dental hygiene. The lack of saliva causes tooth decay. So you’ll need to clean your teeth well, use the Waterpik to floss every time you eat, and use your fluoride trays every night and consider switching to a toothpaste like PreviDent 5000 Plus which will strengthen the enamel in your teeth. Unfortunately, this is all part of the new normal. Of course, it depends on how much damage radiation has done to your salivary glands.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Re: Foaming Saliva [Re: Dizz_zzey] #199365
11-02-2019 06:28 AM
11-02-2019 06:28 AM
Joined: Jun 2007
Posts: 10,401
PA
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ChristineB Offline
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ChristineB  Offline
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Joined: Jun 2007
Posts: 10,401
PA
YEAH DIZ!!!!

Congrats on finishing your treatments!!!

Let the healing begin!!!


PS... The dry mouth is horrible, its something we all have been thru. Time makes everything better. At least Id like to think so, but it really could be we just learn to accept it and target other things to watch? When just finishing rads, almost everyone has the thick gunky, ropey mucous thats difficult to get out especially challenging when its in the back of the throat. That usually lasts for 4-8/9 weeks post rads then it stops and within 24 hours later comes the driest dry mouth ever!!! Thats the dry mouth phase most of us are familiar with. Yes, the dry mouth when just finishing rads is an annoyance, uncomfortable and a bit of a problem for some patients but its not as bothersome as what most of us encountered 4-9 weeks post rads. You did GREAT going thru rads!!! Im hoping your recovery phase will be similar being fairly smooth getting back to as close to your regular self as possible. Luckily for you, being young gives you a big advantage for faster healing.

Yes, drinking lots of water (48-64 oz) helps. Continuing to take in 2500+ calories (and the 48-64 oz of water) every single day will help you to recover quicker by alleviating your dry mouth and to thin the mucous. Some patients get a portable suction machine to use at home from a medical supply company. In the US it requires a doctors prescription to get one. Every doctor appointment, ask the nurses to suction out any of the thick gunky mucous.

Over the counter (in the US) to help dry mouth like (in the US) reditabs that stick to the top of your mouth and it helps keep your mouth moisturized. Doing frequent rinses (4+ times a day) using 1 cup warm water, 2 tsp baking soda and 2 tsp salt mixed together swishing it around your mouth and gargling for about a minute before spitting it out, doing at least 3 swish/gargles at a time should help too. You can also try running a humidifier at night, having a water bottle within reach at all times so you can take a couple sips during the night, sleeping with your head elevated... sort of like laying on an incline or slant may help. Over the counter dry mouth rinses have mixed results from those here who have used them. I didnt find much help from it so stopped using it.

Hope this helps you!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: Foaming Saliva [Re: Dizz_zzey] #199374
11-03-2019 04:21 PM
11-03-2019 04:21 PM
Joined: Sep 2019
Posts: 17
Rochester Y
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ArdenDD Offline
Member
ArdenDD  Offline
Member
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Joined: Sep 2019
Posts: 17
Rochester Y
Congratulations on finishing treatment!!! My husband keeps bottled water with him and does lots of swish & spit actions.

Sending good healing vibes your way!


Spouse of patient 7 weeks post radiation as of 9/30/19
Re: Foaming Saliva [Re: ArdenDD] #199388
11-04-2019 05:00 PM
11-04-2019 05:00 PM
Joined: Mar 2018
Posts: 70
Maine
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Vicky1 Offline
Supporting Member (50+ posts)
Vicky1  Offline
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Joined: Mar 2018
Posts: 70
Maine
My dad bought some plastic squeeze bottles intended for cake decorating, and he keeps one of those by his bedside. Since he can't really feel his lip, he gets water all over himself if he tries to drink while laying down. This helps him squirt the water into his mouth better. The little bottle is kind of like a squeezy ketchup bottle you'd find at a street vendor, but with a little cap.

Last edited by Vicky1; 11-04-2019 05:01 PM.

My father's information:
65 years old
Diagnosed 2/28/18 w Stage 4, N0 Verrucous carcinoma (VC) an uncommon variant of SSC
Mandibulectomy and free-flap reconstruction 5/30/18
Diagnosis changed to SSC.
Began treatment of 30 rads and 5 Cisplatin Cycles on 7/18/18
Decided not to do any more Cisplatin after the first one.
Finished treatment on 8/31/18.
3.19 Abscess & Recurrence wide mouth resection
4.16.19 Scapular Flap Reconstruction surgery
9.6.19 Clear CT!
Re: Foaming Saliva [Re: Dizz_zzey] #199414
11-10-2019 10:25 PM
11-10-2019 10:25 PM
Joined: Jun 2019
Posts: 44
San Antonio, Texas
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Mokie Offline
Contributing Member (25+ posts)
Mokie  Offline
Contributing Member (25+ posts)
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Joined: Jun 2019
Posts: 44
San Antonio, Texas
Congratulations Dizz!!! That’s great. Sorry to hear about the mucous situation. Maybe the moister you keep it the easier it will be to control or expectorate more often before it builds up. Looks like you’ve got excellent guidance as usual. What a relief that the radiation is past tense. Hope this next stage of your recovery is not too draining for you. Commendable how you keep posting to help others no matter what your going through. Your awesome girl. Keep up the fight. Wishing you nothing but rainbows.


SSC Lt sublingual tongue; Age 62
Positive biopsy 20June2019
Staging done 2 Jul : Stage 1
Quit smoking 15 years ago; not a drinker; no HPV
Pet/ CT 6Jul2019 : Negative. Not even the Lt tongue lit up.
Partial Glossectomy 22Jul2019
Re: Foaming Saliva [Re: Dizz_zzey] #199425
11-13-2019 12:39 PM
11-13-2019 12:39 PM
Joined: Mar 2018
Posts: 67
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CM57 Offline
Supporting Member (50+ posts)
CM57  Offline
Supporting Member (50+ posts)
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Joined: Mar 2018
Posts: 67
Hi Dizz,
My Radiation Oncologist nurse set me up with a prescription of Neutrasal, which is a dry powder you mix with water, and it's is supposed to stimulate saliva. There are other brands also, ask about calcium phosphate rinse powder.
I wouldn't say that it worked on demand, but I felt that it helped slowly but surely, and kind of gave my mouth a clean feel after rinsing with it.
Somehow they got it fully covered under my prescription plan in New York.
All the best,
CM57

Last edited by CM57; 11-13-2019 12:51 PM. Reason: Spelling correction of Neutrasal

Enlarged left cervical lymph node in neck on 1/9/18. Male, age 60. Had retired from working as a computer technician and a project manager for almost 38 years, on 7/1/17.
Node was removed 1/16/18 and found to have SCC P16.
Chest xray clean.
Since then, PET/CT, slight activity left parotid, possible malignancy left lingual tonsil. MRI clean.
3 endoscopies, nothing seen.
2/26/18 Larryngoscopy,primary not found.
TORS 3/23/18 lingual tonsil biopsy.,biopsy negative.
Chemo/rads started 4/18/18.
Re: Foaming Saliva [Re: Vicky1] #199427
11-13-2019 01:23 PM
11-13-2019 01:23 PM
Joined: Jun 2019
Posts: 111
D
Dizz_zzey Offline OP
"OCF across the pond"
Dizz_zzey  Offline OP
"OCF across the pond"
Senior Member (100+ posts)
D

Joined: Jun 2019
Posts: 111
Hey Vicky,

The squeezy bottle is a great idea! Sometimes I find I just need the moisture but not a drink. I'll invest in a couple of bottles. Thank you!


F 39 x-smoker, rare drink
T4aN1/N2bM0 SCC L lateral tongue &10mm into R
Diagnosed May 20th '19
Pembro trial 5th July '19 2 doses pre-surg 15 post surg
R.I.G fitted 9th Aug '19
Surgery 13th Aug '19 subtotal glossectomy neck dissection RFFR
33 doses RT Start 17th Sept '19
2x cispltin
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