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throat dilations #198825
08-03-2019 05:01 PM
08-03-2019 05:01 PM
Joined: Jul 2009
Posts: 1,392
Los Angeles
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David2 Offline OP
Patient Advocate (1000+ posts)
David2  Offline OP
Patient Advocate (1000+ posts)
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Joined: Jul 2009
Posts: 1,392
Los Angeles
Hi everyone - I've mainly been dealing with my new prostate cancer diagnosis lately and have therefore not been around much here, but my thoughts are still with all forum members.

Now, a new problem.

A month ago I had a throat dilation. I've had many over the last 10 years and thought this one was working. But it seems not to be. My new ENT mentioned that if it were not to be effective he would have 2 additional things to try: botox injections, and actually cutting the throat muscle.

My question: has anyone had either of these and can you tell me how they worked?

Thanks, all
David


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 10 years all clear in 6/19 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
Re: throat dilations [Re: David2] #198826
08-03-2019 06:26 PM
08-03-2019 06:26 PM
Joined: Jul 2012
Posts: 3,213
NYC
P
PaulB Offline
Patient Advocate (old timer, 2000 posts)
PaulB  Offline
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Joined: Jul 2012
Posts: 3,213
NYC
Hi David! It has been awhile since we spoke, and I’m sorry to hear your new diagnosis with prostate cancer, and wish you the best with that!

I’ve been having the throat dilations about the same time. if not slightly less. Thankfully, I never had a problem with any which were done by my GI doctor. They found from biopsy that I have barretts esophagus, precancerous, so I need them at least once a year to do a biopsy since the condition can turn cancerous in a small minority.

I did see a voice specialist as suggested by my ENT cancer surgeon, who’s an otolaryngologist also. He was going to do an injection, forget the type, into the voice box to help strengthen it. Too much was going on at the time, and had a recurrence, so I never went back.

As far as surgery, I haven’t been approached with that type. My surgeon wanted to do lip reconstruction after the nerve was cut during a mandiblectomy, so the left side is slanted. The surgery would lift the lip. I brought up about reconstruction under my swollen neck, and he could do that too, but after thinking, I would rather do one thing at a time,m. So far I haven’t done anything since something always happens to delay this.

Sorry, I don’t have much information on the surgery or type. Instead of these surgeries becoming eady got me I have become more cautious, and have delayed some.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Re: throat dilations [Re: PaulB] #198830
08-04-2019 06:33 AM
08-04-2019 06:33 AM
Joined: Oct 2012
Posts: 1,104
Toronto, Canada
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gmcraft Offline

Assistant Admin
gmcraft  Offline

Assistant Admin
Patient Advocate (1000+ posts)
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Joined: Oct 2012
Posts: 1,104
Toronto, Canada
Hi David,

My husband had two magnets placed in his throat (one on each side of the blockage). He also had a feeding tube then and that’s how they accessed the bottom end of the blockage. The magnets came together and it opened up the blocked esophagus. He was then given dilatations.

I don’t know if this procedure will work with your situation. What’s more, i’m In Toronto, Canada. If you would like more info about the doctor, please pm me. I’m also thinking along the lines of your doctor consulting the interventional radiologist who pioneered my husband’s procedure.

Best of luck with everything.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Re: throat dilations [Re: David2] #198832
08-04-2019 09:49 AM
08-04-2019 09:49 AM
Joined: Jun 2007
Posts: 10,349
PA
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ChristineB Offline

Administrator, Director of Patient Support Services
ChristineB  Offline

Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 10,349
PA
Hi David!!!

Nice to see you posting but Im very sorry you are having issues!!!

Ive read a great many posts about the dilations and have spent time with several friends who have had this done. Seems like overall most will agree it does help. The only drawback is many complain about having to redo the process to maintain the desired results. A close friend had it done and like you didnt have much of a change so she opted to repeat the process about a month after the first one. That did the trick and she was ok for quite a while until it wore off and she redid it, Im guesstimating about a year later. This time it only took one attempt to obtain the desired results.

Hope that info helps you!!! We all know what works on one wont work for another but Im hoping you are similar to my friend and doing it again will make a big difference and be a success.

Good luck with everything!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: throat dilations [Re: ChristineB] #198844
08-06-2019 04:54 PM
08-06-2019 04:54 PM
Joined: Jul 2009
Posts: 1,392
Los Angeles
D
David2 Offline OP
Patient Advocate (1000+ posts)
David2  Offline OP
Patient Advocate (1000+ posts)
D

Joined: Jul 2009
Posts: 1,392
Los Angeles
Thanks, folks. I appreciate the suggestions. I recall that my earlier dilations did indeed help for a year or even more before I'd have to go back for another one. This time was different. I'll continue to research options, and wish everyone good health.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 10 years all clear in 6/19 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18

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