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Liquid calories #198831
08-04-2019 07:12 AM
08-04-2019 07:12 AM
Joined: Jul 2019
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Jules88 Offline OP
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Jules88  Offline OP
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Joined: Jul 2019
Posts: 5
As I sit here waiting for TORS and neck surgery, I have been doing a lot about liquid calories and shakes because of swallowing issues.

Question- I am lactose intolerant so what would be best to use? I can use use almond milk but what else? Anyone else have this issue? And if so did you use a soy or plant protein powder?

I can mash veggies and stuff but I am thinking of bad day options. Trying to prep for worse and hope for better!

Re: Liquid calories [Re: Jules88] #198833
08-04-2019 02:18 PM
08-04-2019 02:18 PM
Joined: Jul 2012
Posts: 3,213
NYC
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PaulB Offline
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PaulB  Offline
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NYC

Jules 88,

I haven’t had this type of surgery, so o don’t have much to offer, but it’s good that you’re planning ahead with what if days.

I have trouble chewing and swallowing, and have no teeth! I was in the nursing home as of this morning, but fell this morning! I ate the puréed diet and was fantastic! I ate like I member ate before and put on two pounds of the 10 I lost, i have to find out how they prelate it.

At home myself, I used all kinds of liquids to purée depending what I was cooking. I’ve used water, chicken or beef broth, coconut milk, regular milk, and Soy milk, and maybe others I can’t while on pain meds for surgery tomorrow for my hip. Not exactly cancer related, but it does have an effect from lifestyle to medications!

Good luck with your surgery!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Re: Liquid calories [Re: PaulB] #198834
08-04-2019 03:25 PM
08-04-2019 03:25 PM
Joined: Jul 2019
Posts: 5
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Jules88 Offline OP
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Jules88  Offline OP
Member
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Joined: Jul 2019
Posts: 5
Paul,

Any info is helpful! You just never know how things will work or what you may need. I think I have the need to control what I can as it feels like so much is now outta my control.

Hope your surgery goes well!

Re: Liquid calories [Re: Jules88] #198835
08-04-2019 06:46 PM
08-04-2019 06:46 PM
Joined: Jul 2012
Posts: 3,213
NYC
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PaulB Offline
Patient Advocate (old timer, 2000 posts)
PaulB  Offline
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Joined: Jul 2012
Posts: 3,213
NYC
I think the same thing! Except when o know O have sound advice, and stayed with those doctors! Once I had four consults, and settled with one team who stood by me until i was cancer free!

Good luck with everythong!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Re: Liquid calories [Re: PaulB] #198837
08-05-2019 04:54 AM
08-05-2019 04:54 AM
Joined: Aug 2018
Posts: 233
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ConnieT Online
Gold Member (200+ posts)
ConnieT  Online
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Joined: Aug 2018
Posts: 233
I used to be on faculty in an orthodontic department at a dental school. in the olden days, when patients had their jaws restructured, we wired their mouths shut for 6 weeks. i cannot imagine! They learned creative ways to get food in. one gal would put a cheeseburger in a blender and turn it into a shake! i suppose after awhile, even a cheeseburger shake might sound good.

Hopefully, you can find some options that you will enjoy


Spouse of 56 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
Re: Liquid calories [Re: ConnieT] #198838
08-05-2019 05:42 AM
08-05-2019 05:42 AM
Joined: Oct 2012
Posts: 1,104
Toronto, Canada
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gmcraft Offline

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Posts: 1,104
Toronto, Canada
Do you have access to a dietitian at your hospital? They can give you suggestions and even recipes. Don’t wait till the last minute. If there is one available, contact him/her now and pick their brains.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Re: Liquid calories [Re: Jules88] #198914
08-23-2019 02:15 AM
08-23-2019 02:15 AM
Joined: Jun 2019
Posts: 39
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Dizz_zzey Offline
"OCF across the pond"
Dizz_zzey  Offline
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Joined: Jun 2019
Posts: 39
Hemp milk is really thin but full of nutrients, if that helps.


Female 39 ex-smoker, rarely drinks

Stage 4 Oral Cancer (T4aN1/N2bM0 SCC of the left side of the tongue) Diagnosed on May 20th 2019

Started immunotherapy trial keynote 689 5th July 2019 (2 doses pre-surgery)

Radiologically Inserted Gastrostomy (RIG) fitted 9th Aug 2019

Surgery 13th Aug 2019 sub total glossectomy, neck dissection, radical free flap reconstruction

Home 22nd Aug 2019

Radiotherapy due to start mid-late September 2019

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