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#198631 07-02-2019 05:01 AM
Joined: Jul 2019
Posts: 1
Jane W Offline OP
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Joined: Jul 2019
Posts: 1
I have recently been diagnosed with squamous cell carcinoma, HPV positive and would like a list of the best treatment centers in the US to go to. I will travel anywhere for the best option, I live in Boston Ma
Thank you


Jane W
Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Welcome to OCF! Im sorry to read about your recent diagnosis!

In the links below you will find the lists for the top facilities in the US. The Comprehensive Cancer Centers (CCCs) are the top cancer treating facilities in the US. Some of the top names you may hear are MD Anderson, Sloan Kettering, Moffitt, Johns Hopkins to name a few. Ive also included a link that you will find very helpful to learn correct up to date info about your condition to help you to be the best advocate you can be for yourself. Find the best medical team for you

Oral cancer (OC) is NOT an easy road! Treatments can be difficult as well as a longer than expected recovery but in the whole scheme of things we all do whats necessary to permanently eliminate the OC. Believe it or not, HPV+ is a good thing as what caused the OC! Most HPV+ patients get thru everything a little easier with better results. First appointments can be upsetting, try to take someone along as an extra set of ears to take notes or ask if the doc allows your sessions to be recorded. Intake will soon become VERY important, more-so than you could ever imagine!!! Thats the key to getting thru this as easy as possible.

Best wishes with everything!!!

NCI list of CCCs

US News Best Hospitals List

Main OCF Site... Understanding section




Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Feb 2015
Posts: 133
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Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Feb 2015
Posts: 133
Likes: 7
Jane: The good news is that you are in Boston as is Dana Farber. They are the best and heve kept me alive since 2003. I've sent you a P M


SCC stage 1 Nov. '03,
SCC stage 2 (clear mrg, no rad, no chemo) RND, Feb. '15
SCC stage 1, lower gum Mar '23

TLC356

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