| Joined: Aug 2018 Posts: 345 Likes: 8 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Aug 2018 Posts: 345 Likes: 8 | glad to see the crazy is gone from the board today. someone thought they were clever.
biopsy today ENT said it's probably 75% chance of cancer. the tumor board met and were quite concerned but he told me that it seemed more like necrosis from radiation and if i had him backed into a corner, that's what he felt he was seeing. He said it looked like cancer a few months ago but it wasn't so i'm holding my breath.
feeding tube was cleaned out and sutured. It had not healed and was spilling out food and even more painful. They put in staples that need to be removed. I said...gee, you had a c section but no baby! I've had 2 c sections so now he got to experience it. He said this is 3-5 times worse than the feeding tube while it was still in. And remember, he barely took pain meds during radiation. The feeding tube has been an issue since last August. No one in my area (2 counties have been called) carried Lortab (I believe) so he's taking the hydrocodone he never took during radiation and chemo. he had a full bottle.
So i will update on Monday. Long long day. 3 hours under to do both procedures and 8 hours at the hospital. I"m exhausted and he looks like he went through a war.
Spouse of 58 yr old with BOT cancer Stage 4a HPV16 positive 3 chemo treatments cisplantin 35 radiation treatments 7000 cGy former smoker/chewed tobacco for 38 yrs. 1/2020 diagnosed with cancer near TMJ 4/2020 chemo 5 days every 2 weeks 6/2020 proton therapy 9/21/2020 cancer free
| | | | Joined: Jun 2013 Posts: 346 Likes: 3 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | Wow, that's a lot! I hope that feeding tube area finally heals up for him! And glad that he at least has some painkillers on hand to help him through it. No need to suffer when you don't have to; there's more than enough of that to go around.
((hugs))
Keep us posted on what they decide to do about the biopsied part ... I've been reading along and keeping y'all in my thoughts.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
| | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | I’m glad they have put stitches in to close the feeding tube site. I was told that stomach acid can flow out of the stoma and it can give the patient or caregivers bad burns. So, maybe your hubby isn’t exactly a wimp. Anyway, with stitches in he should now start to recover from that.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Gloria is correct!!! The feeding tube site can become a big problem if its not healing. What comes out of the tube site causes painful burns on the patients sensitive abdominal skin. Its happened to me, boy does it hurt plus it seems to take forever to heal. When it happened to me it was 5 or 6 weeks for the burns to get better. Also all those abdominal muscles are used more than most of us realize which makes even the smallest movements very painful, even more so if there are burns around the tube site.
Best wishes on Monday. We're all hoping for good news. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2018 Posts: 345 Likes: 8 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Aug 2018 Posts: 345 Likes: 8 | no cancer. doc even said it today that it did not look like cancer even though he expected it to be cancerous. they were quick to call to tell him good news today!
he's moaning like crazy about that incision and i can't have a lot of sympathy. i had 2 c sections and babies to take care of and he will not take pain meds. he can moan all he wants but no sympathy here. I've been in extreme pain for 6 weeks with a pinched sciatic nerve so I'm hunched over and in screaming pain. So, if he wants to hurt, that's his choice! he won't take pain meds as they constipate him.
Last edited by ConnieT; 04-25-2019 06:26 PM.
Spouse of 58 yr old with BOT cancer Stage 4a HPV16 positive 3 chemo treatments cisplantin 35 radiation treatments 7000 cGy former smoker/chewed tobacco for 38 yrs. 1/2020 diagnosed with cancer near TMJ 4/2020 chemo 5 days every 2 weeks 6/2020 proton therapy 9/21/2020 cancer free
| | | | Joined: Aug 2018 Posts: 345 Likes: 8 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Aug 2018 Posts: 345 Likes: 8 | i posted this yesterday figured it would get lost in the posts. i don't remember what the ENT called it but he was pretty sure it wasn't cancer once he saw the area he biopsied. So many ups and downs with this cancer stuff. Guess he gets to do it again in a few months. He went back to work today which surprised me.
Spouse of 58 yr old with BOT cancer Stage 4a HPV16 positive 3 chemo treatments cisplantin 35 radiation treatments 7000 cGy former smoker/chewed tobacco for 38 yrs. 1/2020 diagnosed with cancer near TMJ 4/2020 chemo 5 days every 2 weeks 6/2020 proton therapy 9/21/2020 cancer free
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Congrats!!! So happy to hear theres no cancer!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2022 Posts: 26 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Nov 2022 Posts: 26 |
Jdub
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