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#198096 04-09-2019 08:43 PM
Joined: Mar 2019
Posts: 28
Judy210 Offline OP
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Mar 2019
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Can anyone tell me if they received a drug called AMIFOSTINE? Been researching it and it is FDA APPROVED for head and neck cancer tx. Studies have shown very significant reduction in Mucositis if given 30 min before radiation and it protects kidneys if given before chemo. It does not affect the effects of radiation on the tumors. I’m just amazed that I have not seen it mentioned before. Side effects are drop in BP and nausea but effects only last during the 15 min infusion. Anyone else heard or been given this Med?


Wife and cheerleader. Right sided BOT dx 2/25, surgery 3/7 for tumor removal (clean margins) 2 lymph nodes 1 pos for ECE (ugh), pT2N1M0 HPV POSITIVE (one small blessing in this nightmare), Stage changed to Stage 1 due to diffuse and large HPV status. tx plan 33 radiation, 5 cisplatin chemo to begin 4/12.
Joined: Jul 2012
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

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Hi Judy!

There are about 3 pages worth of questions and answers in regards to Amifostine dating back a decade or so if you go to the Search feature here at the top of the page. I looked into amifostine, has another name too, about 10 years ago, and deemed for myself it wasn’t for me, as it has many side effects. It’s given intravenously or orally. I forget which was better over the other. My cancer center had did studies with it, but I think it was stopped, before my time.

You can still ask about and research it as the dosage could have changed it.

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






PaulB #198111 04-11-2019 08:30 PM
Joined: Mar 2019
Posts: 28
Judy210 Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Mar 2019
Posts: 28
After the feedback from doctors and everyone here went back and read those posts and YUCK! And seems no one clearly had any better outcomes than those who don’t get it. Moving on with mouth washes, diligent brushing and biotene.


Wife and cheerleader. Right sided BOT dx 2/25, surgery 3/7 for tumor removal (clean margins) 2 lymph nodes 1 pos for ECE (ugh), pT2N1M0 HPV POSITIVE (one small blessing in this nightmare), Stage changed to Stage 1 due to diffuse and large HPV status. tx plan 33 radiation, 5 cisplatin chemo to begin 4/12.
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
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Heres some reading about the "new" Biotene we see on todays store shelves. Before you spend money on overpriced mouth rinses, read these posts!!! .......

OCF forum, Biotene Products

OCF forum, Return of Biotene

PS.... These links show what OCF's founder Brian Hill does behind the scenes every single day to helping thousands of OC patients and caregivers.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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