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Re: New from India [Re: Vishwambhar] #196936
08-17-2018 05:52 AM
08-17-2018 05:52 AM
Joined: Jun 2007
Posts: 10,189
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ChristineB Offline

Administrator, Director of Patient Support Services
ChristineB  Offline

Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 10,189
PA
Im so very sorry!!!! Take this one step at a time and hopefully this can be easily fixed.

Best wishes!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: New from India [Re: Vishwambhar] #197227
09-24-2018 10:55 PM
09-24-2018 10:55 PM
Joined: Oct 2016
Posts: 15
V
Vishwambhar Offline OP
Member
Vishwambhar  Offline OP
Member
V

Joined: Oct 2016
Posts: 15
Hello everyone!!

Diagnosed with metastatic SCC of lungs.

oncologist advised for Chemo 6 cycles and informed me about poor prognosis.

Not able to decide whether should i go for Chemo again or should i leave it as it is.I googled for metastatic SCC of lungs it shows very poo prognosis with life expectancy of 6 to 12 months..

Depressed & Confused!!




Vishwambhar

SCC,Left mandibles
Stage:T2N2M0
Mandibulectomy on 17/10/2016
radical neck dissection
Cisplatin/5FU -3 cycles
35 radiation completed on Jan 2017
Re: New from India [Re: Vishwambhar] #197228
09-25-2018 03:52 AM
09-25-2018 03:52 AM
Joined: Jun 2007
Posts: 10,189
PA
C
ChristineB Offline

Administrator, Director of Patient Support Services
ChristineB  Offline

Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
C

Joined: Jun 2007
Posts: 10,189
PA
Im so very sorry!!! The newer immunotherapy chemos of Keytruda or Opdivpo have worked very well for some patients. It may be worth trying them. Best wishes with everything!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: New from India [Re: ChristineB] #197649
11-27-2018 02:40 AM
11-27-2018 02:40 AM
Joined: Oct 2016
Posts: 15
V
Vishwambhar Offline OP
Member
Vishwambhar  Offline OP
Member
V

Joined: Oct 2016
Posts: 15
I have login my father's profile to inform you that my father has lost his battle with cancer on 10/11/2018.

Thanks for supporting him throughout his journey..

Caregiver to father
Hukendra Sahu


Vishwambhar

SCC,Left mandibles
Stage:T2N2M0
Mandibulectomy on 17/10/2016
radical neck dissection
Cisplatin/5FU -3 cycles
35 radiation completed on Jan 2017
Re: New from India [Re: Vishwambhar] #197650
11-27-2018 04:55 AM
11-27-2018 04:55 AM
Joined: Jun 2007
Posts: 10,189
PA
C
ChristineB Offline

Administrator, Director of Patient Support Services
ChristineB  Offline

Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
C

Joined: Jun 2007
Posts: 10,189
PA
Thank you for letting us know. Im very sorry for your loss. In time, may memories of happier, healthier times help to bring you comfort.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: New from India [Re: Vishwambhar] #197652
11-27-2018 06:03 AM
11-27-2018 06:03 AM
Joined: Oct 2012
Posts: 1,029
Toronto, Canada
G
gmcraft Offline

Assistant Admin
gmcraft  Offline

Assistant Admin
Patient Advocate (1000+ posts)
G

Joined: Oct 2012
Posts: 1,029
Toronto, Canada
I’m sorry for your loss. My condolences to you and your family.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Re: New from India [Re: Vishwambhar] #197653
11-28-2018 10:59 AM
11-28-2018 10:59 AM
Joined: Jun 2017
Posts: 29
M
Magnum Offline
Contributing Member (25+ posts)
Magnum  Offline
Contributing Member (25+ posts)
M

Joined: Jun 2017
Posts: 29
Wishing you strength and courage as you deal with so much grief in the loss of your father. May your beliefs sustain you, encourage your spirit and see you through this difficult time.


Susan
04.12.16 1st surgery; rt partial glossectomy; neck dissection; 2/38 lymph nodes positive
05.12.16 Resected T2, N2b, M0
05.24.16 Rad, Cisplatin
10.03.16 Clear PET
04.11.17 Clear PET
06.09.17 1st recur
06.21.17 2nd Surg: rt partial glossectomy; forearm free flap; rt thigh skin graft
11.09.17 2nd recur
11.30.17 Nivolumab
02.06-16.18 Brachytherapy
06.12.18 3rd recur
06.12.18 Lt axillary lymph node SCC
07.05.18 Pain pump placd
08.23.18 Pump removd
10.29.18 PET-CT responds to treatmnt


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