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Re: Angry and Confused [Re: suz47nascar] #197537
11-05-2018 03:48 PM
11-05-2018 03:48 PM
Joined: Oct 2012
Posts: 1,102
Toronto, Canada
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gmcraft Offline

Assistant Admin
gmcraft  Offline

Assistant Admin
Patient Advocate (1000+ posts)
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Joined: Oct 2012
Posts: 1,102
Toronto, Canada
I’m sorry for your loss. My condolences to you and your family.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Re: Angry and Confused [Re: suz47nascar] #197538
11-05-2018 04:05 PM
11-05-2018 04:05 PM
Joined: Aug 2018
Posts: 230
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ConnieT Offline
Gold Member (200+ posts)
ConnieT  Offline
Gold Member (200+ posts)
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Joined: Aug 2018
Posts: 230
so sorry to hear this. hugs to you on this journey of loss.


Spouse of 56 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
Re: Angry and Confused [Re: suz47nascar] #197539
11-05-2018 05:58 PM
11-05-2018 05:58 PM
Joined: Jun 2013
Posts: 332
alabama
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KristenS Offline
Platinum Member (300+ posts)
KristenS  Offline
Platinum Member (300+ posts)
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Joined: Jun 2013
Posts: 332
alabama
So very sorry. That surely is a shock. ((hugs)) and prayers.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
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