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ConnieT Offline OP
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husband was so sick after the feeding tube and 2 weeks of treatments and now we are in week 6 and while he sleeps a lot of the time, I'm not sure he is even taking pain medication much as he's afraid of the constipation. He had to drive himself to treatment on Thursday as the doctor was remapping his treatment plan and it took him a few days to get it done. I had already scheduled 2 notary jobs as afternoons were always empty and no treatments. He's been driving himself around a bit this week. Boyfriend we don't know asked to meet husband to talk about marrying our daughter. Really? you don't even know us and husband has zero voice to talk and you must do this? I will say it's quite irritating to me all the way around. Oh well, life lately.

This journey so far has been quite the emotional ride for me but I have friends taking care of me and inviting me to do things. I am blessed. I have appreciated the support from this group and since things haven't gone the way it seems for others, each day is unpredictable. I'm still fighting my allergic reaction to all the chemicals in my husband and staying clear of him as much as possible. Day by day....that's all any of us can handle.



Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
Joined: Apr 2018
Posts: 51
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Posts: 51
Just some quick advice about the constipation caused by the opioids. Laxatives are a must while taking these drugs. I used Smooth Move tea, magnesium, stool softeners, senekot, whatever worked.


Diagnosed 11/17 SCC right side of tongue
Surgery 2/18 Partial Glossectomy
Radiation 3/18 - 5/18
Clear PET scan 10/18
Non smoker, occasional alcohol use
Joined: Aug 2018
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ConnieT Offline OP
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He has had a lot of issues with constipation. He is finally getting it under control so he could take some pain meds! I tried the Smooth Move tea, magnesium, etc. None were working but docs said to do the laxatives and add lots of water to the feeding tube. It seems to be working now.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
Joined: Jun 2013
Posts: 346
Likes: 3
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Joined: Jun 2013
Posts: 346
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Wow. What timing.

Just seeing this, as we were out of town, but I hope that conversation goes well...


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
Joined: Aug 2018
Posts: 345
Likes: 8
ConnieT Offline OP
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Joined: Aug 2018
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husband texted across the table from boyfriend! he gave him some things they had to do in order to receive his blessing to get engaged. They have only dated 9 months and are young. daughter just started grad school and is juggling a lot. we are juggling health issues, expenses, stress, etc. He told them to be engaged at least a year before getting married so I hope they decide to do that. It will give us time to get to know him and plan a nice wedding. This is my only daughter. I have 2 sons already married.

Last edited by ConnieT; 09-24-2018 08:24 PM.

Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
Joined: Jun 2013
Posts: 346
Likes: 3
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Jun 2013
Posts: 346
Likes: 3
Oh, wow, good! And wow on the grad school ... that's a lot!


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery

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