I think you need to have some faith in your doctors. None of us is in a position to make a definitive statement. If you can’t trust the doctors you have seen, then you need to go find a second or even third opinion.

Welcome to OCF! Im very sorry you are going thru a scare at this time.

Ive watched your posts and seen you have received many replies with good advice on what your next steps should include. Unfortunately, medical systems, hospitals, doctors and even specialists can vary greatly depending on which one you see in which part of the world. Off the top of my head I cant think of any of our members who are from your area to help guide you thru Chinas medical system. Here in the US, dentists mostly focus on teeth and do not usually treat mouth sores. Only a very few will do an occasional biopsy but this is normally done by an ENT or oral surgeon. Patients always should go to someone who is very experienced to get the best medical care possible. Even experienced medical professionals can not tell by simply looking at something what it is. A biopsy is the only way to tell for certain what any sore, bump, lump, etc is.

To further explain... Any sore, bump, spot, etc that appears in the patients mouth that has not resolved itself within 2-3 weeks should be checked by a professional. By "professional" I mean an ENT who specializes in treating oral cancer patients. Not all ENTs are the same, you do not want to see one who primarily puts tubes in childrens ears. An oral surgeon may be another reliable specialist to get checked by but only if they specialize in treating oral cancer patients and not TMJ or wisdom teeth removal.

As others have already advised, our site is made up of oral cancer patients/survivors and caregivers. We do NOT have years of medical school, clinical patient experience, the patients full medical history, or even the patients in front of us to be able to determine what is going on. Even seeing photos isnt a help to us as we are NOT medical professionals and arent qualified to explain test results written in complex medical jargon (or translated from another language). Another thing to take into consideration when asking questions here is that every single patient is different and will respond to things in their own unique ways which may or may not be similar to another patient who has a similar history. Comparing patients is never an equal comparison. You can take 10 people who on paper appear identical... same age, sex, weight, tumor size, tumor location, stage, node involved, live in the same general area, same habits (smoking or not, drinking or not), etc. On paper you would think all of these people would pretty much go thru the same things with treatments, recovery, etc. But they do NOT! This is why patients need to seek out the very best medical care they can and follow their doctors instructions until they are completely healed.

Since you have first noticed the sores in your mouth a few years ago and noticed more recent changes 6 months ago, its time to take this problem seriously. Your next step should be to get a definitive answer as to what exactly you have going on in your mouth. You should seek out a qualified medical professional for at the very least to review your test results. Since the test was so long ago you may need further testing to determine exactly what you are dealing with. This time I suggest listening to your doctors advice. You will need to follow up on this until you have a complete understanding of what you are dealing with and how to fix it. The more time that is wasted delaying a diagnosis and treatment, the harder it will be to treat. If your mouth issue is diagnosed as cancer, you MUST take care of this and not brush it off. Untreated cancer can quickly advance and become very difficult to treat. You do not want to be in a position in what could have been easily fixed months ago, is not able to be treated any longer and is considered terminal.

Another thing that could be negatively affecting your mouth issue is stress. Its not easy to avoid stress but stress can make medical issues far worse than if the patient led a less stressful life. One other thing that would be helpful is to avoid any mouth irritants. Anyone who has a mouth sore (that could be a serious problem) should avoid alcohol, all forms of tobacco (e-cigs too), mouthwash that contains alcohol, etc. These things can play a significant role in irritating your mouth. Over the years, Ive seen many people who simply avoided the mouth irritants and their mouth healed itself.

I hope you can do your best to get to the bottom of what brought you to our online public forum. Its up to you to make this a priority and get it taken care of. Please let us know how you make out. Best wishes with everything!