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Joined: Jul 2003
Posts: 235
Gold Member (200+ posts)
Gold Member (200+ posts)

Joined: Jul 2003
Posts: 235
I'm at a loss, as are the doctors. My Mom hasn't been able to keep anything in her stomach for about a week. 60 cc of water, 1/2 can of Boost, nothing. She throws it all up. Starting about mid-week, during her week off, this all began. I couldn't give her her meds through the g-tube because she threw it up. This all started suddenly. I thought perhaps that it could be related to anxiety, but that's just a guess. Zofran through the IV stopped working too. I was looking forward to this week because it's to be her final week of chemoradiotherapy, but this setback postponed her treatment. The weight loss isn't good, she's getting depressed and having fear that this feeling of constant sickness will never leave. On Sunday she did nothing but vomit from 7:30 AM until roughly 7:00 the following morning. At least I was able to get her to the hospital. I generally am able to keep my composure, but I kinda lost it on Sunday. I wish I wouldn't have shown my weakness, but it's difficult to remain stoic sometimes. I felt so helpless in my ability to help her and felt so bad about seeing her in so much discomfort. I didn't want her to see my cry, but she did and then she got upset because I was visibly shaken. Has anyone else experienced anything similar with regard to terrible mid-week nausea and vomiting? A week ago the docs told us the worst was behind us, but I question that. I don't know what to do. Her personality is such that she is generally susceptible to the power of suggestion, so I am wondering about asking the doctor to consider giving her a placebo "nausea wonder drug" in an attempt to get rid of the nausea. Is that wrong? I hate to dupe her, but I need to find a solution. Then, last week during our visit to the clinic, the doc kind of pissed me off because he basically told her he was surprised she wasn't depressed. He said that most patients generally get depressed at this stage of the game. I was mad at him because I know how prone she is to hanging on people's words. Maybe he was just doing his job, but if she was depressed she would have told him so. Now I'm wondering if his comment set her off. But then again she does have a history of experiencing mid-week nausea since beginning treatment. However, we were always able to control it with meds through the IV. Since that no longer appears to be working, I'm freaking out. Any ideas?


Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
The doctors lied! The worst is right now and for several weeks post treatment. I was sick a lot during this time. Was it the radiation? I don't know. There were many things that can cause it. Zofran is mainly effective in the first 4 days, then you need something else, like compazine. Nausea is a standard side effect of this treatment. In my case the meds lost most of their effectiveness as time went on (they're not 100% effective to begin with). Zofran, I believe is only 60% effective.

I lost over 60 lbs -went from 170 to 109!
I have gained back 18 lbs. and average about 2 lbs per week.

I know its hard to watch a loved one go through this. My wife was pretty freaked out. The body is much more resilient than you realize. 5 months ago I didn't think I was going to live through this and today I am playing bass in a band and doing landscape maintenance.

Depression is normal for a cancer patient at this phase. The doctors were preparing you to watch for it since you are your mothers advocate.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)

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