| | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Mar 2013 Posts: 421 Likes: 1 | Hey Ranger,
Welcome to the club no one really wants to belong to. The battle is about to begin and I won't sugar coat it...it's brutal. Hang tough and keep on putting one foot in front of the other. It'll be over before you know it.
Positive thoughts and prayers
"T"
57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
| | | | | Joined: Apr 2013 Posts: 92 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2013 Posts: 92 | Chiming in, hi there Ranger, welcome and sorry you have to be here.
Just as everyone before me said, its no picnic but you will make it through. We will all be here for support, feel free to ask any questions or just let loose a good rant occasionally.
AGE 38 10-2012 thru 3-2012 swollen lymph node,painful jaw and ear,2 antibiotics,X-ray,CAT scan,needle biopsy,scope, no answers
3-4-13 tonsillectomy and selective neck dissection, DX R tonsil SCC,METS to 1 lymph node,BOT,HPV+, stage IV
TX 35 RAD,3 chemo cisplatin/Taxol started 4-8-13
rad end 5-29-13
| | | | | Joined: Aug 2013 Posts: 9 "OCF Canuck" Member | | "OCF Canuck" Member
Joined: Aug 2013 Posts: 9 | hey Fishmanpa thanks for the kind words | | | | | Joined: Aug 2013 Posts: 9 "OCF Canuck" Member | | "OCF Canuck" Member
Joined: Aug 2013 Posts: 9 | thank you rosymonroe
and god bless | | | | | Joined: Apr 2013 Posts: 319 Likes: 1 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 Likes: 1 | Welcome, Ranger, sorry to hear about your situation! And you are right, this too shall pass! We share something besides the cancer, other than which I am the healthiest person I know. I haven't had so much as the sniffles in several decades.
I do have chronic sinusitis because 1) I'm allergic to cats, and have lived with one or two for the past 34 years; and 2) I'm allergic to Oak pollen, and have lived surrounded by Oaks for longer than that. But other than remembering to take something to blow my nose on, it has no impact on my life.
Be anal about getting 2500 cal/day inside yourself, along with at least 64 oz of water. Most here recommend a min of 48 oz, but 64 is better. Constipation is a major problem with most chemo varieties (although for some, the problem is exactly opposite - go figure...) and water is essential both for lubricating the intestines and for metabolizing and excreting the chemo.
If/when you begin to feel anxiety or fear, examine what you can do, and do everything you can think of. At that point, realize that all you can do is all you can do. When you've done it, let it go, direct your attention elsewhere and do not let your mind dwell on the fear.
Good luck, Ranger!
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | | Joined: Apr 2013 Posts: 92 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2013 Posts: 92 |
AGE 38 10-2012 thru 3-2012 swollen lymph node,painful jaw and ear,2 antibiotics,X-ray,CAT scan,needle biopsy,scope, no answers
3-4-13 tonsillectomy and selective neck dissection, DX R tonsil SCC,METS to 1 lymph node,BOT,HPV+, stage IV
TX 35 RAD,3 chemo cisplatin/Taxol started 4-8-13
rad end 5-29-13
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Welcome to OCF, Ranger!
Please take a few minutes to review the private message )PM) I have sent. Look towards the top center of the page on the menu bar next to where it says "My Stuff". You should see a small flashing envelope. Click on it and you will be taken to your messages. The info includes detailed instructions on how to make a signature and tips for navigating the forum.
Thank you!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2013 Posts: 9 "OCF Canuck" Member | | "OCF Canuck" Member
Joined: Aug 2013 Posts: 9 | Monday was a very eye opening day, they missed my vain again in right arm so now they will only use left arm to draw blood ohch! so monday was signing concent forms, blood work , radiation, IV hydration 2hrs chemo IV 1hr, hydration another 2hrs total 8 hrs | | | | | Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2012 Posts: 214 Likes: 1 | No question about, chemo days are long, hard, and boring. Plus you get to wheel the bag stand down the hall to the IMRT room. The effects from chemo last a few days to a week. I thought wed night and thurs morning were the toughest point. Stay current on you pills. Chemo fog might, and probably will set in. Good luck.
Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
| | | | | Joined: Aug 2013 Posts: 9 "OCF Canuck" Member | | "OCF Canuck" Member
Joined: Aug 2013 Posts: 9 | thanks for quick reply and good advise | | |
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