| | Joined: May 2013 Posts: 4 Member | | Member Joined: May 2013 Posts: 4 | I really appreciate the information and wisdom here. I'm glad this forum is available. Experienced answers and straight talk. Thank you. I have recently experienced some symptoms that resemble base of tongue cancer. 3 months ago I began experiencing a strange feeling in my throat, like I needed to swallow something on the left side that wasn't there; no pain. A week later I was was having intermittent earaches. 2 months ago I went to see my GP, and he couldn't find anything, so he referred me to my ENT 1 month later the ENT scoped my throat (through my nose) and sent me for a CT with contrast. a week later the ENT called me back in and said we need to do a biopsy on some questionable tissue as the CT revealed irregular tissue and possible mass at base of tongue. I couldn't get any more info from the ENT because he wants to do the biopsy first. Actually, he had really tried hard to minimize any fears. Since that visit my throat has started hurting, my tongue burns, the back of my tongue is very sore, and both of my ears are hurting. No fever, chills, nausea, or redness in the ears. In a couple days I will have the biopsy. Not sure what to expect, how much or what he will biopsy, or if he sees something that could be removed, I don't know if he will remove it??? So, again I appreciate this site, and I hope someone can comment on the symptoms, and looming biopsy. Thanks in advance!
Last edited by JerryGB; 05-14-2013 07:44 PM.
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 71 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 71 | Usually base of tongue cancers are pretty good size when found. This means that the biopsy will be just that, a small sample removed, they won't try to do more. Cutting too much on the base of tongue can be dangerous as all the nerves that allow you to move your tongue and its blood supply are there. It's hard to be patient with the process, but on these cancers you have to be. Good luck.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | | Joined: May 2013 Posts: 4 Member | | Member Joined: May 2013 Posts: 4 | Brian, Thanks for jumping so quickly. I will try to be patient.
62 yowm, FL Panhandle symptoms began 3/13 1st ENT visit 4/13 Biopsy (Base of tongue) scheduled for 5/21/13
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 71 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 71 | IF this comes back positive, please check back with the board before you let any doctor decide your treatment plan. Too often patients go down a path that has serious long term quality of ice issues. Everyone that is here will be able to help you any next steps IF you have a positive biopsy. You don't get to make many decisions in a cancer journey, but the most important one that you have control over is where you get treated, and by what kind of TEAM. No individual doctor should decide your path for you.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | | Joined: May 2013 Posts: 4 Member | | Member Joined: May 2013 Posts: 4 | Thanks for the advice. I would like to go to the best facility I can afford if the biopsy is positive. I will be back if that happens. Thanks!
62 yowm, FL Panhandle symptoms began 3/13 1st ENT visit 4/13 Biopsy (Base of tongue) scheduled for 5/21/13
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Yes please let us know what the biopsy revels and of course good luck!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Jerry, welcome to OCF! You have been given advice from the very best person about base of tongue cancers. I hope that this is not the case with your situation. But if it does turn out to be cancerous, you have found OCF which will help you get thru everything.
Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: May 2013 Posts: 4 Member | | Member Joined: May 2013 Posts: 4 | Christine, Thanks for the reply. I'm afraid I have been reading too much. My symptoms appear to be serious and include many of the warning signs. Not to put the cart before the horse so to speak...but I am concerned. This is such a great place with a lot of knowledgeable people. Thanks everyone for sharing your experience.
62 yowm, FL Panhandle symptoms began 3/13 1st ENT visit 4/13 Biopsy (Base of tongue) scheduled for 5/21/13
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Jerry, I was reminded by another member to have you ask about HPV when you have your biopsy. Because of the location of your suspected tumor its a very good possibility that HPV is the cause of this. That is of course if you have cancer. Im still hoping you dont. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: May 2013 Posts: 188 Likes: 4 Senior Member (100+ posts) | | Senior Member (100+ posts) Joined: May 2013 Posts: 188 Likes: 4 | Jerry you have connected with a great group that is experienced and will counsel you through this. I was recently diagnosed and in 2 weeks will start therapy. Keep the group involved.
Age 55 HPV 16+ SCC, BOT 050613 Stage IV great team at OSU Tx 6 weeks of rad started June 3 8 weeks of chemo started May 28 RTOG Phase III trial Cetuximab group. Treatment completed 7/16/2013 PET Scan completed 10/08/13 Results discussed 10/11/13 NED - Free but am I Next part of the journey? 1year PET 10/24/14 NED Good reports now 10 years out. | | |
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