Previous Thread
Next Thread
Print Thread
#164955 05-14-2013 07:42 PM
Joined: May 2013
Posts: 4
Member
Member

Joined: May 2013
Posts: 4
I really appreciate the information and wisdom here. I'm glad this forum is available. Experienced answers and straight talk. Thank you.
I have recently experienced some symptoms that resemble base of tongue cancer.
3 months ago I began experiencing a strange feeling in my throat, like I needed to swallow something on the left side that wasn't there; no pain.
A week later I was was having intermittent earaches.
2 months ago I went to see my GP, and he couldn't find anything, so he referred me to my ENT
1 month later the ENT scoped my throat (through my nose) and sent me for a CT with contrast.
a week later the ENT called me back in and said we need to do a biopsy on some questionable tissue as the CT revealed irregular tissue and possible mass at base of tongue.
I couldn't get any more info from the ENT because he wants to do the biopsy first. Actually, he had really tried hard to minimize any fears.
Since that visit my throat has started hurting, my tongue burns, the back of my tongue is very sore, and both of my ears are hurting. No fever, chills, nausea, or redness in the ears.
In a couple days I will have the biopsy. Not sure what to expect, how much or what he will biopsy, or if he sees something that could be removed, I don't know if he will remove it???
So, again I appreciate this site, and I hope someone can comment on the symptoms, and looming biopsy.
Thanks in advance!

Last edited by JerryGB; 05-14-2013 07:44 PM.
JerryGB #164956 05-14-2013 07:50 PM
Joined: Mar 2002
Posts: 4,918
Likes: 71
OCF Founder
Patient Advocate (old timer, 2000 posts)
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,918
Likes: 71
Usually base of tongue cancers are pretty good size when found. This means that the biopsy will be just that, a small sample removed, they won't try to do more. Cutting too much on the base of tongue can be dangerous as all the nerves that allow you to move your tongue and its blood supply are there. It's hard to be patient with the process, but on these cancers you have to be. Good luck.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
JerryGB #164957 05-14-2013 07:53 PM
Joined: May 2013
Posts: 4
Member
Member

Joined: May 2013
Posts: 4
Brian, Thanks for jumping so quickly. I will try to be patient.


62 yowm, FL Panhandle
symptoms began 3/13
1st ENT visit 4/13
Biopsy (Base of tongue) scheduled for 5/21/13
JerryGB #164960 05-14-2013 08:01 PM
Joined: Mar 2002
Posts: 4,918
Likes: 71
OCF Founder
Patient Advocate (old timer, 2000 posts)
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,918
Likes: 71
IF this comes back positive, please check back with the board before you let any doctor decide your treatment plan. Too often patients go down a path that has serious long term quality of ice issues. Everyone that is here will be able to help you any next steps IF you have a positive biopsy. You don't get to make many decisions in a cancer journey, but the most important one that you have control over is where you get treated, and by what kind of TEAM. No individual doctor should decide your path for you.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
JerryGB #164962 05-14-2013 08:08 PM
Joined: May 2013
Posts: 4
Member
Member

Joined: May 2013
Posts: 4
Thanks for the advice. I would like to go to the best facility I can afford if the biopsy is positive. I will be back if that happens. Thanks!


62 yowm, FL Panhandle
symptoms began 3/13
1st ENT visit 4/13
Biopsy (Base of tongue) scheduled for 5/21/13
JerryGB #164990 05-15-2013 05:56 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Yes please let us know what the biopsy revels and of course good luck!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
JerryGB #164995 05-15-2013 06:25 AM
Joined: Jun 2007
Posts: 10,507
Likes: 8
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 8
Jerry, welcome to OCF! You have been given advice from the very best person about base of tongue cancers. I hope that this is not the case with your situation. But if it does turn out to be cancerous, you have found OCF which will help you get thru everything.

Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #164998 05-15-2013 06:48 AM
Joined: May 2013
Posts: 4
Member
Member

Joined: May 2013
Posts: 4
Christine, Thanks for the reply. I'm afraid I have been reading too much. My symptoms appear to be serious and include many of the warning signs. Not to put the cart before the horse so to speak...but I am concerned.
This is such a great place with a lot of knowledgeable people. Thanks everyone for sharing your experience.


62 yowm, FL Panhandle
symptoms began 3/13
1st ENT visit 4/13
Biopsy (Base of tongue) scheduled for 5/21/13
JerryGB #165016 05-15-2013 03:19 PM
Joined: Jun 2007
Posts: 10,507
Likes: 8
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 8
Jerry, I was reminded by another member to have you ask about HPV when you have your biopsy. Because of the location of your suspected tumor its a very good possibility that HPV is the cause of this. That is of course if you have cancer. Im still hoping you dont.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
JerryGB #165036 05-16-2013 02:13 AM
Joined: May 2013
Posts: 188
Likes: 4
Senior Member (100+ posts)
Senior Member (100+ posts)

Joined: May 2013
Posts: 188
Likes: 4
Jerry you have connected with a great group that is experienced and will counsel you through this. I was recently diagnosed and in 2 weeks will start therapy. Keep the group involved.


Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,264
EzJim 5,260
Brian Hill 4,918
Newest Members
Kimkb, Red Chicken, Teach, Harry B, Snowdrop123
13,504 Registered Users
Forum Statistics
Forums23
Topics18,305
Posts197,297
Members13,504
Most Online7,516
Mar 21st, 2026
Powered by UBB.threads™ PHP Forum Software 8.0.1