#16416 09-21-2004 04:54 PM | Joined: Sep 2004 Posts: 1 Member | OP  Member
Joined: Sep 2004 Posts: 1 | Hey yall, my name is Jason; I have been a cancer survivor for 13 months. My wife had been bringing me home copies and copies of your stories, info. chat
JW Dx 7/18/03 scc stage4 R lower jaw floor of mouth & R tonuge. 8/1/03 removed part of R jaw R floor mouth R tongue.Replaced with bone&tissue from L leg.8/15/03bad margins,removed rest of jaw to hinge.With R hip .36 rad treatments.
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#16417 09-21-2004 05:57 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | JW, Welcome to the board, sorry that you have to be here. We call this "The Club That No One Wants to Join."
The great thing about this board is not only can you learn from others experience, but also because everyone's experience is different, we can also learn from your experience.
We look forward to hearing from you in the future, we sort of become one big family.
Welcome to our family.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#16418 09-21-2004 07:56 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Yes, Welcome JW... Ask away with your questions... We look forward to getting to know you...
Eric
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#16419 09-21-2004 09:07 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Jason
Well sounds like you know a lot about us! Glad you could join us, hope we can all help each other along this rocky road...
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#16420 09-22-2004 01:18 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Jason,
Welcome to this site. I'm glad you've found help here, and I'm sure you'll find more as you go along. Feel free to send in your questions -- that's what this forum is for.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#16421 09-22-2004 01:28 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Jason,
Welcome! There are some awesome people on this board with lots of information to help! You will enjoy it so much! Things that are said here are with love and support. You will be in my prayers!
Take care and God bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#16422 09-22-2004 02:17 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Welcome Jason, Like Debbie said, there are totally awesome people here, ready to listen and share stories, God Bless You!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#16423 09-22-2004 02:58 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Jason.
Glad you could join the forum and share your experience as well as educate yourself on one wicked diaease. Looking forward to hearing about your experiences. Ask anything and someone will answer.
Take care, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#16424 09-22-2004 03:01 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Jason! A 13 months survivor! Way to go! Sending a toast for many, many more months your way  and looking forward to hearing about your journey! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#16425 09-22-2004 04:18 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Jason,
You're my age and had similar treatment to mine. I had my left lower jaw removed and replaced with bone from my leg and also had radiation and a neck dissection. I finished treatment on July 10th, 2003 and I'm now 14 months post treatment, 17 months post surgery. I feel fantastic even though I have a few surgeries looming to take care of some minor cosmetic issues and dental implants for my lower jaw.
Did you have a neck dissection?
I am assuming that your children are still quite young, I hope they are dealing with it well and that life is beginning to get back to normal.
Take care and ask any and all questions you may have.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#16426 09-22-2004 04:42 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Hello Jason
I just wanted to extend a welcome to you...glad you found your way here, sorry you had to.
Take Care
Marica
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caregiver to husband Pete. Dx 4/03 SCC base of tongue stage IV. rad/chemo no surgery. finished treatment 7/03 and doing great.
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#16427 09-22-2004 09:12 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jason,
It looks we were diagnosed at about the same time. Actually, I had my biopsy 7/18 and the hammer dropped when I got the phone call 7/21. I am glad to see you are finally visiting us in the flesh (well, sort of ). Your story was just great, knowing that you were sitting around every day reading all of the posts.
I don't know if any of us could have made at without all of us! Glad to have you here.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#16428 09-22-2004 10:51 AM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 153 | hey Jason,
you got the right stuff! you and your wife were doin great getting you the info during your treatment.
glad to hear that things are progressing well.
cu,
larryb | | |
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