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#15192 04-29-2004 08:21 AM
Joined: Apr 2004
Posts: 1
Member
Member

Joined: Apr 2004
Posts: 1
Dear Marjorie,
Since March 10th, my mother (age 67) has undergone 3 surgeries with Dr. Weinstein (floor of mouth resection, partial laryngectomy, modified neck dissection). He is an excellent surgeon and you couldn't ask for a better hospital. Rest assured, you are in the right place!

We were a little skeeved about her PEG tube at first, but now realize that she is getting all the nutrition she needs to get well. The tube was inserted during the first surgery. It took over 4 weeks for the incision to heal and it still leeks a little. Better she had the tube placed when she was relatively healthy as opposed to having it inserted when she became malnourished.

Mother also had tracheostomy to ensure that she could breathe adequately after the surgeries. We are still really skeeved about the trach tube. It needs to be suctioned out quite often. However, it is only temporary until the swelling in her neck goes down.

Coincidentally, we have an appointment on 5/5 with GSW. I would be happy to discuss our experience with cancer, Dr. Weinstein and HUP in detail if you like. I found that sharing experiences with others helps a great deal. This is my first post so I


Daughter of mother with oral and laryngeal cancer
#15193 04-29-2004 11:32 AM
Joined: Mar 2002
Posts: 4,918
Likes: 71
OCF Founder
Patient Advocate (old timer, 2000 posts)
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,918
Likes: 71
CCUFF......you can private message the person that you wish to talk to and there is no way anyone at OCF or elsewhere can access whatever you send. Click on the second little icon of the people shaking hands to do this. You could also ask the person you wish to talk to to private message you their email address and speak to them that way. OCF is considering putting the email links to everyone back up on the board (A fourth litlle icon that we took off). We took them off line when we thought that they might easily be acessed by spam companies, but many people have contacted me that they want them turned back on. We had not had a problem before, we were just trying to be safe and protect the posters.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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