| | Joined: Jul 2012 Posts: 7 "OCF across the pond" Member | | "OCF across the pond" Member Joined: Jul 2012 Posts: 7 | Hi, first of all I would like to say that I am not diagnosed with oral cancer but I am very worried because of my symptoms. I am 20 years old, I smoke about 15 strong cigarettes a day and I drink rarely. First of all I have a small Leukoplakia (I think this is the case, it may be something else), secondly I have a very small lump on the inside of my lower lip. Both of them are not painfull , so I can't tell when they occured, I only found them several days ago. I already have an appointment with my dentist. Even if it is cancer I am optimistic that everything will be fine, because it is in early stage, no pain, no open wounds, etc. I would be gratefull if you share some of your thoughts and oppinions. If someone knows another medical condition associated with those symptoms please share it, it would be atleast some relief until my appointment with the denstist comes. I forgot to mention that when I get up in the morning I have bad breath, regardless of the fact that I care for my teeth big time and that I have no tooth ache! Thanks in advance!
Last edited by Bryan Edwards; 07-11-2012 04:21 AM.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Welcome to OCF. Hope you do not need to be here! I am unsure of how things work in other countries regarding dentists, ENT (ear,nose and throat specialists) and oral surgeons. here in the US when a person suspects something serious they would see either an ENT or oral surgeon who would do a biopsy. Many professionals can suspect what it may be but only with a biopsy can they be certain. Here is an image gallery from the main OCF pages. Click on each photo then click on the word 'diagnosis'. You will be able to see why its so difficult to visually diagnose only by sight. You may encounter dentists who are not familiar with oral cancer. You may also find them dismissive due to your age. Im sorry to say, you are not too young for this. There are many younger people who have been diagnosed with oral cancer or some pre cancers weather a smoker or non smoker due to HPV. In the US both male and females under age 26 can get a series fo 3 shots to protect them from HPV (which is known to cause oral cancer). Any sore that has been in your mouth for 2 weeks or longer should be checked by a professional. As far as the smoking goes, quit. There are hundreds of chemicals in tobacco and any one or combo of them could be irritating your throat. You do NOT want to end up looking like I do because of a silly habit. Im a former smoker myself and am now disfigured for the rest of my life all from making the bad choice and smoking. Im very lucky to be alive as Ive seen so many others not make it. PLEASE!!! QUIT!!!!! Let this be your wake up sign, you may not get another chance. Best wishes!!! OCF photo gallery ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2012 Posts: 7 "OCF across the pond" Member | | "OCF across the pond" Member Joined: Jul 2012 Posts: 7 | Thanks for the response, fortunately the situation in my mouth if far, far better than those in the gallery, so if it is something it's just starting. I had a conversation with my personal doctor, and she said that this may happen because of lack of some types of vitamins. For that manner I bought some vitamins and see of there is any improovement. My appointment with the dentist is on Monday. She is familliar with oral cancer and said to me that age does not really matter. I am also going to check myself for HPV. Thanks for the quick response! | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Bryan, Don't belittle this and make sure you get a Dx from a qualified oral professional. Most, if not all, front line dentists in the US would refer your presentation on to an ENT. It may be nothing but it also could be cancer. At present there is no reliable oral HPV test and with the location of what you describe it's unlikey related to HPV so I wouldn't bother. I would look into the HPV vaccination. Also we all agree with Christine's advice re STOPPING THE TOBACCO USE. Good luck and keep us posted.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Bryan - you mentioned your small lump not being painful. I would not minimize this, as Oral Cancer is not always painful when it occurs. My son kept putting off seeing an ENT and only did so when the lump under his tongue became very painful and the doctor told him the pain was due to the OC being wrapped around a nerve. I sure hope for you that it turns out to be nothing, but in any case you would be doing yourself a tremendous favor and prolonging your life by giving up the tobacco in any form.
Last edited by Anne-Marie; 07-11-2012 06:26 AM. Reason: typo
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Agreeing with all of the above.. Go see a qualified ENT who has experience with oral cancer. Smoking can definitely cause oral cancer so quitting is primary but young people who have leukoplakia - etc. can develop a very aggressive cancer with no precursors for the disease. Not to say that all leukoplakia will become cancerous.. But there is the potential it will, so quit the cigarettes be seen by an ENT and most importantly keep an eye on your mouth. Take care and good luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2011 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts) Joined: Dec 2011 Posts: 126 | Hi Bryan, my oral cancer started out as Leukoplakia - no one told me it was pre-cancerous until it was too late unfortunately. I don't think it started out as OC though; at first it was just a white patch, but then over a period of a few months a red bump developed underneath it. Do you notice if there is any bump under the spot? I think that is the point where it turned into cancer, from what I can tell. I have a very high tolerance for pain, so I blew it off until it was too painful to eat. I got a dentist family friend to look at it, who then sent me to an oral surgeon. He didn't want to be the one to give me the bad news, but later on he said he knew immediately that it was cancer, so your dentist might be able to at least give you an opinion while you wait to see an oral surgeon/ENT. Where is your leukoplakia? Mine was on the left side of my tongue. Good luck! Let us know how it goes.
Emily - 24 years old at diagnosis HPV-, no risk factors T2N2b Squamous Cell Carcinoma Left oral tongue, poorly differentiated Hemiglossectamy, reconstruction, partial neck dissection 30 Radiation treatments, weekly chemo (cisplatin) 1/13/12 last day of treatment Diagnosed October 2011
| | | | | Joined: Jul 2012 Posts: 7 "OCF across the pond" Member | | "OCF across the pond" Member Joined: Jul 2012 Posts: 7 | No, I don't feel any bumps. The way I found out about it was by moving my tongue around my mouth and I felt somethning rougher than the soft tissue in the mounth. When I took a closer look I saw it is white. It is barely noticable if you don't know what you are looking for, but by the description found on the internet I think it is Leukoplakia, it may be something else, I am not sure. The lump I've got ot the inside of my lower lip worries me more actually, but I'll see. I have appointment with my dentist and my personal doctor on Monday so, untill than I can only guess what and if somethning is wrong. | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Bryan - This is how to know if you've had a good oral cancer exam: GoodOralExam
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jul 2012 Posts: 7 "OCF across the pond" Member | | "OCF across the pond" Member Joined: Jul 2012 Posts: 7 | I am glad to say that since I started taking vitamins and washing my mouth with some herbal water my Leukoplakia patch is starting to decrease in size and is also getting smoother like the rest of the tissue in my mouth. Regardless of that I am going to my dentist and then to a specialist to get fully checked out in order to make sure that me and my dentist didn't miss something. I am also giving my best to quit smoking. Yesterday I smoked just 1 cigarette, today not even one so far. I'll keep you posted 
Last edited by Bryan Edwards; 07-12-2012 12:25 AM.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | I seen many smokers who have gotten rid of using tobacco have their lesions disappear. There are over 50 known cancer causing chemicals in every cigarette. All of that irritates the sensitive mouth membranes and can cause sores. Getting rid of the tobacco will most likely get rid of any non cancerous sore as it is an irritant. Im very glad to hear you have decided to quit using tobacco. If you want to see my photo of what tobacco did to me, click the below link and that should help you decide to quit for good. Best wishes with your exams! ChristineB photo ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2012 Posts: 7 "OCF across the pond" Member | | "OCF across the pond" Member Joined: Jul 2012 Posts: 7 | Hey, I am happy to say that I don't have oral cancer, neither any other form of cancer. I went to my dentist today and the lump I had on the inside of my lower lip is some kind of a gland which changes its size in time. One day it's small, the next is bigger or something like that. Just to be on the safe side she sent me to a doctor who is specialized in oral cancer for a chekcout. The white patch is completely gone after several days of washing my mouth with herbal water. That's all from me. I wish you all the best and especially fast recovery to those who still haven't completed their battle with this scary decease!
Last edited by Bryan Edwards; 07-16-2012 07:59 AM.
| | | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | | Gold Member (200+ posts) Joined: Dec 2010 Posts: 291 | Bryan, And right now that white patch my disappear after resting it from cigarette smoke & gently rinsing it (Christine's post), but if you continue smoking, on a day in the future, it may not resolve. Hopefully this time you are off the hook, and this incident is only a warning to you. Best, Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA GIST tumor sarcoma, removed 9/2011, no chemo needed Clear on both counts as of Fall, 2021
| | | | | Joined: Jul 2012 Posts: 7 "OCF across the pond" Member | | "OCF across the pond" Member Joined: Jul 2012 Posts: 7 | So far I haven't smoked for about 5 days and I hope I won't smoke again | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | That is SO good to hear, Bryan! Keep hanging in there!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: May 2012 Posts: 114 Senior Member (100+ posts) | | Senior Member (100+ posts) Joined: May 2012 Posts: 114 | Awesome Bryan! Keep it up!
Amy CG to mom Janet - diag w/ early SCC 8/11-surg w/ rad neck dissect & graft from arm/thigh 9/11-evid in nodes tx 6 wks rads (5/wk) w/cistplatin (1/wk for 6 wks) began 11/11-wk or 2 break 12/11 due to severe side effects-done 1/12- 3/23/12 mets to liver lung bone-hospice 4/7/12-lost fight 4/22/12 | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | The only way to quit smoking is to never smoke another cig again, forever and forever. Hope should not enter into that equation.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Good point, David. as with any endeavor, if you EXPECT success, it is more likely to happen.
So Bryan - every minute, hour, of every day, expect success and your "Great Expectations" will continue to bring you success. There are lots of resources all around to help. I did hear of one particularly interesting method that suggests substituting some other activity when the urge to smoke presents itself: the "SSS" method or "Sexual Substitution System" which could be limiting unless you are in a committed relationship with a willing participant. Other former smokers can probably help more than I (a non-smoker) can with their own suggestions of how they became successful.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jul 2012 Posts: 7 "OCF across the pond" Member | | "OCF across the pond" Member Joined: Jul 2012 Posts: 7 | The worst already passed, most of the physicall symptoms are gone so things are going well. I want to thank everybody for the support  | | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | I'm so glad to hear that, Bryan. Also remember that if you stay off the tobacco that will encourage your friends as well. You may be able to save your life and others as well! Best wishes, Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Bryan, a couple things I found helpful were to avoid people places and things which were linked to my smoking. I stayed away from my smoker friends for at least a month. I didnt go to restaurants where smoking was allowed or in your case it would probably be out to bars or clubs where they allow smoking. By eliminating the triggers it will make it easier. The biggest hurdle is to make up your mind to never smoke again. Once you have it in your mind you dont want to smoke anymore then it can be done. I was a small part of the CDC's Tips From Former Smokers campaign. There are alot of tips to help you stay successful. Never forget what you just went thru and what could happen. That will go a very long way in keeping your mind made up not to smoke. Tips From Former Smokers ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | |
| Forums23 Topics18,305 Posts197,297 Members13,504 | | Most Online7,516 Mar 21st, 2026 | | | |