| | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) |  "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2011 Posts: 131 | Hi
Hope rads are going well for you ken and Sam
Ken I got the Manuka from my local health food shop but you can get it lots of places but try and get the +16 type. Radiotherapy isn't fun but you will get through it . I thought the mouth sores would be bad but it really wasn't just a few weeks were uncomfortable. You will feel tired and fed up but you will get through it and be strong again
Hugs
Jayne
Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator
Age 45
| | | | | Joined: May 2012 Posts: 6 Member | | OP Member
Joined: May 2012 Posts: 6 | 12 rads done. I have developed two sores but not bad enough to take any pain meds.
I have started on caphasol as well. So now i am alternating between mugard and caphasol. I would say mugard works for sure. I see some small sores coming up and than they disappear.
tounge cancer(right bottom), stage 3
Tongue sugery and Modified neck disection 4/12, out of 27 lymph nodes just one had .01 dot..doing radiation for that dot!
Radiation 5/12- 6/12
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sam, I noticed you were online this morning and wanted to let you know about an event coming up in NJ. Its on Sept 22 in Andover NJ. I will be there along with several other OCF members (10 or more). Hope you are up to attending, oral cancer survivors are free. NJ OC Walk
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2012 Posts: 6 Member | | OP Member
Joined: May 2012 Posts: 6 | Chiristine,
Sorry do not go on this forum as frequentely so did not see your message. Definately will try to attend this walk. I have some other commitment on that day but will try to skip that.
Thanks,
Sam
tounge cancer(right bottom), stage 3
Tongue sugery and Modified neck disection 4/12, out of 27 lymph nodes just one had .01 dot..doing radiation for that dot!
Radiation 5/12- 6/12
| | | | | Joined: May 2012 Posts: 6 Member | | OP Member
Joined: May 2012 Posts: 6 | Final updat on mugard:
Towards the end of treatment ( week 5 and 6), i did develop mouth sores but my doc said they were much lesser than most patients. She also now recommends mugard. I used caphasol and mugard together.
I would recommed using both from the start of the treatment if your insurace covers it. You could also contact the manufacturer and they will cover in the case your insurance does not.
I am 9 weekx post treatment now and doing very well, can eat most foods.
Sam
tounge cancer(right bottom), stage 3
Tongue sugery and Modified neck disection 4/12, out of 27 lymph nodes just one had .01 dot..doing radiation for that dot!
Radiation 5/12- 6/12
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Great that you are doing so well! I was fortunate to attend the Cleveland walk and hope that you can make the NJ event.
Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | |
| Forums23 Topics18,199 Posts197,006 Members13,185 | | Most Online614
Jul 29th, 2024 | | |
|
