Previous Thread
Next Thread
Print Thread
#135632 06-22-2011 04:14 AM
Joined: Jun 2011
Posts: 46
"OCF across the pond"
Contributing Member (25+ posts)
"OCF across the pond"
Contributing Member (25+ posts)

Joined: Jun 2011
Posts: 46
Afer my initial diagnosis of oral cancer following a biopsy,I had my CT scan last week 2 days later - as I have already posted it was reasonably straightforward.Canula in the arm and then a short series of scans in a large circular x-ray machine.Dye was injected into my system which made me feel very hot in the chest and bladder area - but this was a temporary sensation.I don't have a problem with needles but I caused a bit of a drama afterwards as I fainted a couple of minutes after the canula was removed.I was detained for a couple of hours while they checked me out - probably all the stress involved.
Went for my MRI scan yesterday determined not to faint(!) and just quietly get through the process.Got that one wrong as I didn't expect what was coming and if I had I think I would have coped much better (or maybe I'm getting a bit soft ?).
I knew I'd have a canula in the arm and be placed in quite a tight cylindrical space as the scans were done.Lying on the bed your head is placed in a small hollow and then a large chunky metal neck brace is placed around your neck and chin and this is clamped to the bed itself.Some large headphones were then placed over my head/ears (very much restricting your hearing) and then a large metal head/face mask tightly fitted to the neck brace, which meant I was completely tightly encased in all of this.I don't think I'm claustrophobic but I must admit I had a bit of a 'moment' when they put the head/face mask on.
I had to ask to sit up and for all of this equipment taken off while I composed myself.Afer a couple of minutes they changed the headphones for foam ear plugs and I had all the equipment put back on and the scans were done - about 30 minutes in total and fairly loud.
I've posted this log just to let people know what they are in for.I can now laugh at my own 'wobble' but I think I would have coped much better if I'd known what to expect.
My surgery is in 2 weeks,but I still don't know the full extent of my cancer or treatment.Good to see this forum and share experiences.

Last edited by Brendan Hanavan; 06-22-2011 09:15 AM.

50 yrs.Non smok.Mod drink.
Tongue canc SCC T2N0M0.
Surg. Jul '11 1/3 rd of tongue rem. & sel. neck diss.PEG fitted.
Aug '11 6 wks chemo/radio.3 more canc. nodes rem.
Feb '12 18 wks chemo.
Nov. '12 Mod rad neck diss on right, & pec flap rep. rem. of tumour under chin. More rad to follow in 2013.
**update** Passed away September 26, 2013
Joined: Apr 2009
Posts: 329
Platinum Member (300+ posts)
Platinum Member (300+ posts)

Joined: Apr 2009
Posts: 329
You handled it much better than I would have. After the neck brace was placed and clamped to the bed I would have shouted LET ME OUT OF HERE...The only MRI I had was below the waist for my knee.

Good luck in the outcome keep us posted.

Connie


SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.

CT Scan 9/11 clean, CT Scan 9/12 clean


Moffitt Cancer Center in Tampa, FL. A+.

My hometown Lockport, NY.



ConnieFL #135643 06-22-2011 06:44 AM
Joined: Dec 2010
Posts: 5,264
Likes: 5
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,264
Likes: 5
Hey there - we all respond to this stuff differently - maybe the radiation fried my brains but the only time I've ever been clamped to a table was during rads... My MRI didn't involve any of that - smile though it was still claustrophobic! I closed my eyes and tried to listen to the instructions! You did fine!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #135652 06-22-2011 08:55 AM
Joined: Jul 2009
Posts: 1,409
Likes: 1
Patient Advocate (1000+ posts)
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,409
Likes: 1
Brendan, congrats. Those scans are certainly no walk in the proverbial park (having had them all) but you came through. Please keep us informed as you progress. I'd also recommend you add a signature to your posts as most of us have done. People can help if the terms are confusing.

Courage!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
I don't think MRI technicians do that bondage thing here in the USA. I've had MRIs done for the last three years at five different centers and while they put little blocks next to my head, that's it. Plus a real popular option here in USA is the new open tube MRI plus MRI where you can stand up.
It was only for my radiation treatments that they used a mask and bolted me to the table. Never for a CT, a MRI or a PETscan.
We'll see what other posters have to say
Keep the faith
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #135660 06-22-2011 12:07 PM
Joined: Sep 2006
Posts: 1,357
Likes: 5
"OCF Canuck"
Patient Advocate (1000+ posts)
"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Sep 2006
Posts: 1,357
Likes: 5
I had the same MRI experience as Brendan as far as the head brace goes. I think mine took about 50 minutes once. I still maintain that you can "get through anything if you keep your eyes closed". I closed my eyes as soon as I laid down on the MRI table/sliding bed and I did not open them again until I was told I was completely clear of the machine. This worked very well as I too am claustrophobic.

What I found amazing was the NOISE!! There was enough clanking and banging to make one think they were in a midevil dungeon.

About the third MRI that I had I fell asleep and they had to bring me out, and wake me up and redo part of it as you actually need to be holding your neck upright to get the scan done properly! The power of the mind to block all that out and fall asleep.

I am glad you let everyone know about you experiences with the MRI process.


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #135680 06-22-2011 05:00 PM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
well the noise is just as bad here in the USA. Interesting the way both the UK and Canada immobilize MRI patients.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #135771 06-24-2011 10:45 AM
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
I just had both a PET/CT and an MRI at HUP in Philly and got a partial bondage treatment on one and a full bondage treatment on the other, not good for one who has had radiation and is claustrophic, so we still get immobilized some palces in the US.

And all I got for my ears for the MRI was a set of earplugs that don't fit my ears. Damn that machine is noisy. Fortunately these machines are brand new so center area is quite large so not as claustrophic as their old ones. I did close my eyes through both and managed to get through without an antiaxiety meds.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Eileen #135772 06-24-2011 11:30 AM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Well , Brendan's point is a good one: that the doctors or the MRI people should give a heads up to patients if there are going to be head restraints. As his post noted, having it sprung on you could be unnerving. I noticed that the Main OCF forum has this to say on Eileen's point
[quote]If you have had fears of being confined in a small space (claustrophobia), you may find magnetic resonance imaging (MRI) to be frightening. This scan requires being placed in a small cylinder surrounded by a large, noisy machine. About 20 percent of people find it hard to tolerate, and about 5 percent are unable to go through with it. There are ways to make it easier today, such as listening to music or relaxation tapes or taking a medication to reduce your anxiety during the procedure. Tapes with instructions for relaxation, guided imagery, and medication can be listened to ahead of time to help you become calmer. [/quote]
Here is the full link Diagnosis and uncertainty - OCF
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #135788 06-24-2011 07:47 PM
Joined: Apr 2011
Posts: 267
Gold Member (200+ posts)
Gold Member (200+ posts)

Joined: Apr 2011
Posts: 267
When I had my MRI they used the blocks on either side of my head and then put tape across my forehead and chin. I'm not claustrophobic but I did find it distressing and was very anxious the whole time I was inside the machine.


Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,264
EzJim 5,260
Brian Hill 4,918
Newest Members
Kimkb, Red Chicken, Teach, Harry B, Snowdrop123
13,504 Registered Users
Forum Statistics
Forums23
Topics18,305
Posts197,297
Members13,504
Most Online7,516
Mar 21st, 2026
Powered by UBB.threads™ PHP Forum Software 8.0.1