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#133841 05-04-2011 07:48 AM
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So...Manuka Honey has officially surpased Snapple as "the greatest stuff on Earth". And....Cheryld has beaten Ken Jennings as the smartest person. When I finally got my 1st mouth/tongue sore at around my 33rd rad TX I knew using more honey would be out of the question. Putting a paper thin slice of cucumber on my tongue and having it burn like acid was a dead give away that just about anything in my mouth was going to hurt. I read a post by Cherly saying that the honey was burning her so she started to use the Magic mouthwash before and after using the honey and it was working well. She was right! I was to the point where I was having to use the meds. syringe just to get water and protien shakes past my tongue. It wasn't looking good as far as staying "no PEG" guy. Now I'm confident I can make it. The sores on the sides of my tongue are gone smile


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
MaineWill #133843 05-04-2011 08:19 AM
Joined: May 2010
Posts: 638
klo
"OCF Down Under"
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Good for you! I am a huge fan of Manuka honey which is well known to most Australians and Kiwis. Manuka is the Kiwi name for the tea tree. The oil from the leaves is also used for its antiseptic properties (mozzie bites, and cleaning mould and mildew off the tiles).

The honey has been studied for treating leg ulcers that I know of and it outperformed the standard dressings during the trial. I believe there is also a trial to look at mouth ulcers at the moment.

I love the tips for using it when your mouth is in really bad shape and offer one more possibility. You can water it down a bit with water, swill it about and then either swallow or spit. Maybe that won't sting quite so much? If it does, at least you know you can put it away and use in on your oatmeal when you are back to eating smile


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
klo #133856 05-04-2011 04:20 PM
Joined: Mar 2011
Posts: 131
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Senior Member (100+ posts)
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yup. I freeze it into little loszengers too. That way you can put it right where you want it and it will stay there, if only for a minute.


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
MaineWill #134024 05-07-2011 11:18 PM
Joined: Sep 2006
Posts: 1,357
Likes: 5
"OCF Canuck"
Patient Advocate (1000+ posts)
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I certainly have not been one to advocate alot of off the wall "cures" but with all my mouth sores recently I thought - what the heck I might as well try the Manuka Honey. I am AMAZED. This honey cleared up 90% of the inside of my cheek within two days. It is expensive, but oh sooooooo worth it. I found the taste pleasant - had expected something more medicinal, and I bought the strongest strength they had - 250+ whatevers!

I can't promise it will work for others - but to all you naysayers - it is definitely worth the try. I'm sold!

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #134025 05-07-2011 11:23 PM
Joined: May 2010
Posts: 638
klo
"OCF Down Under"
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Posts: 638
HI Donna
and when you don't need it for ulcers anymore, you can spread it on your toast smile
Karen
PS finally bought a water pik as you suggested months ago. what a difference! wish we had bought it sooner


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
klo #134072 05-10-2011 09:26 AM
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
OK, so where do you buy this stuff? I've got a sore throat and want to try it.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Eileen #134091 05-10-2011 04:44 PM
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You can get it at Whole Foods or go to Manukahoneyusa.com. I'll warn you that if you already have a sore the honey will burn. You'll want to use some of the Magic mouthwash (you know the numbing stuff) first. The streangh should be 16 or higher. I used it more for prevention. 4 times a day including right before and right after rads TX. Good luck. Will


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
MaineWill #134106 05-11-2011 10:32 AM
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
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Thanks for the info Will. Maybe I'll ask the doctor first.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
MaineWill #135378 06-15-2011 01:59 PM
Joined: May 2011
Posts: 7
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Can I ask how this is used (dose) & if the antioxidants in the honey interfere with the radiation/chemo?


SSC T1N1, Moderate discection of left tongue 9/9/10, removed lymph nodes, no chemo or radiation. 2 clear PET scans then cancer returned T3 (high 2) 3/2011. Lymph node byopsy clear. 6 weeks radation June 6-July 20. Weekly Carboplatin.
Scott69 #135385 06-15-2011 05:34 PM
Joined: Nov 2006
Posts: 2,671
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According to what has been mentioned on this site so far, it seems to work very well for the mouth sores - and also used topically for skin infections, scratches, bites, burns, prevents bacterial infections i.e. staph, leg ulcers, surgical wounds, and can be frozen into little lozenges. Of course it's a good idea check with your doctor first, just to make sure it doesn't interfere with anything else you are taking or experiencing. I found it to be quite expensive at the Health Food Store, but when I went to OCF's link to Amazon, it was about half the price, so it would be good to check it out. If you go to the link from OCF, then OCF can benefit a little, too. Just go to the top of this page and towards the left, click on "Forums' and you will see a link to "Shop Amazon.com".


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Anne-Marie #135400 06-15-2011 09:36 PM
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"OCF Canuck"
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Dosage - if you are undergoing radiation... A spoonful - hold it in your mouth, let it melt and swish it around for 2-3 minutes - then swallow (if you have open sores - it will sting - but it will help!!! ) - do this 4 times a day - - I used to do it 15 minutes before radiation - right after radiation - and then after meals... As it cleans - ask your dr. - of course - as for antioxidants - the main antioxidents they look at are selenium, and the vitamins a & c (or whatever letter) - the honey's doesn't have any of those. Goo luck!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Anne-Marie #135411 06-16-2011 07:41 AM
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Posts: 7
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Posts: 7
Wow. I checked on Amazon & there a so many different stengths. How to know which one would be best?


SSC T1N1, Moderate discection of left tongue 9/9/10, removed lymph nodes, no chemo or radiation. 2 clear PET scans then cancer returned T3 (high 2) 3/2011. Lymph node byopsy clear. 6 weeks radation June 6-July 20. Weekly Carboplatin.
Scott69 #135421 06-16-2011 10:48 AM
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Administrator, Director of Patient Support Services
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If you buy from Amazon, please use the link for OCF. Click on the green box on the forum pages. This will help OCF stay afloat by giving a kickback for your Amazon purchases. This works for anything you would want to buy from Amazon. Thanks!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #135431 06-16-2011 01:48 PM
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16 or up -but keep in mind 16 is the highest strength you can get in nature anything else has been manipulated by man. If you are into strictly organic, go with 16 - if you don't care go higher.

Good luck! And yes go through OCF!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #135644 06-22-2011 07:07 AM
Joined: May 2010
Posts: 638
klo
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The Active Manuka Honey Association (AHMA) of New Zealand is an industry association that was formed in the 1990s as a collaboration of NZ beekeepers dedicated to producing genuine Manuka Honey with antibacterial activity that could be measured using a test developed by Dr P Nolan from the Waikato University. This test produces the scoring system that has since been named the Unique Manuka Factor (UMF) and is a registered trademark.

The UMF standard was established to identify and set apart the type of manuka honey which has the special health-giving benefits referred to in the research. This ensured consumers received a genuine product which was clearly labelled with its UMF activity whilst preventing less scrupulous distributors passing off untested honey.

The UMF score ranges from 0-30 with the medicinal range being from 10-30. 5-9 UMF tastes good but does not have the properties of healing referred to in the research and is not promoted as having any special medicinal properties (and I don't think it is labelled with a UMF rating either). There issome concern that Manuka honey with a UMF rating above 16 (usually 20, 25 or 30) may cause problems with allergies so may be a little TOO active.

As a consequence a range between 10-16 is recommended for medicinal use.

The only suggestion that I was able to find that ratings above 16+ were in any way manipulated by man came from a website promoting a particular brand Wed***** that is NOT one of the licensed NZ Manuka honey producers and does not have a UMF rating on its label.

I believe that grades 20-30 are rare anyway and like particularly good wine, occur when ideal combinations of sun, soil and rain prevail.

Some hospital grade Manuka Honey IS sterilized using gamma radiation in order to remove potentially harmful impurities but it would have this on the label. In this case, �manipulated� has been rendered safer than �natural�.

The official New Zealand AHMA website can be found at

http://www.umf.org.nz/Active-Manuka-Honey-Association.html

and the link to Dr Nolans research can be found on the Waikato University website at

http://bio.waikato.ac.nz/honey/

Please note, the website has not been updated in some time so some information may be superceded.


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
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