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Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Rob

Didn't mean to imply that you were hawking LF. I really did find it comforting that this health powder used those FOS in my Jevity. I get carried away a little bit on "powders" and "shakes" instead of real food since I'm on this PEG. It's not just the health benefits but texture and eating etc. The idea of foregoing that if you could eat, well like the song says
[quote]Don't it always seem to go
That you don't know what you got till it's gone[/quote]
got to run, time for my dinner of real food albeit after the Vitamix: Tonight is Vegetarian Enchiladas (soy crumbles instead of meat) with roasted parsnips. I;m the sous chef: I peeled the parsnips, cut them up, diced the onions, jalapenos, and garlic cloves while my wife does all the cooking. She'll fix my plate and I will dump it into the Vitamix, add water, hit "pulverize" and in 90 seconds it will be suitable to put down my feeding tube. I can't taste it, but I can savor dinner with my wife.
Somehow even the most organic "healthy" powders don't compare.
Keep the Faith
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Feb 2007
Posts: 176
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Feb 2007
Posts: 176
Wow!
I was never on a feeding tube (probably should have been), but was ordered by everyone to chug down 2000 calories/day by drinking Ensure. I could not handle the taste, nor could I understand how those ingredients were actually good for me. I set out to build my own drinks and base it on quality of calories. If I need to consume x calories, they may as well each mean something.
Stay healthy, you are inspiring to everyone that comes in contact with you.
All the best,
Rob Jaffe



6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
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