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Eileen #125101 11-22-2010 12:38 PM
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I am so sad and don't know what to say....you are both in my prayers frown

Hugs,

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
Eileen #125102 11-22-2010 12:51 PM
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Paula I pray that you will have peace in your heart. I pray that you will not question yourself, but know that you did your best through this journey. I am so sad for you, but I know that Jim will be at rest and at peace.
All my love.
Christine


CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
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Paula,
My Mom died of cancer at 52 and my Dad of Diabetes at 67. Both times I thought I had known so long that there was no way I would feel grief at either of their deaths. But you can't pre grieve so don't beat your self up that you aren't ready or you would some how be prepared for this time. As I told a friend this weekend who lost her only son at 43 to a sudden death. I don't think the loss every goes away but the sharp edges smooth with time. I will keep you in my prayers.


55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
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Paula

Please don't second guess yourself. My diocesan paper referenced a New Yorker article by an oncologist with this particular excerpt. I hope it provides you some comfort since it documents just how right your actions are:
[quote]The simple view is that medicine exists to fight death and disease, and that is, of course, its most basic task. Death is the enemy. But the enemy has superior forces. Eventually, it wins. And, in a war that you cannot win, you don�t want a general who fights to the point of total annihilation. You don�t want Custer. You want Robert E. Lee, someone who knew how to fight for territory when he could and how to surrender when he couldn�t, someone who understood that the damage is greatest if all you do is fight to the bitter end.

More often, these days, medicine seems to supply neither Custers nor Lees. We are increasingly the generals who march the soldiers onward, saying all the while, �You let me know when you want to stop.� All-out treatment, we tell the terminally ill, is a train you can get off at any time�just say when. But for most patients and their families this is asking too much. They remain riven by doubt and fear and desperation; some are deluded by a fantasy of what medical science can achieve. But our responsibility, in medicine, is to deal with human beings as they are. People die only once. They have no experience to draw upon. They need doctors and nurses who are willing to have the hard discussions and say what they have seen, who will help people prepare for what is to come[/quote]


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Dear Paula...I Don't know what to say except that both you and Jim are in my prayers for a peaceful passing and may time heal your heart..


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
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Paula,

So sorry to hear this. I'm praying for you both.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
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Paula, Honey I'm so very sorry. You are a most wonderful wife and caregiver. Yours is one of the most hardest fought battles I have ever known of. No matter how much you think you are prepared-you aren't. Hold his hand, tell him you love him and know he is going to a better place.


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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Thanks everyone for all of your heartfelt words and for the wisdom and experience that you all have shared with me. Jim lost his battle yesterday @ 10:45 am. I was holding his hand and rubbing his arm. His breathing never changed - he took one deep gasp of air and then it was done. Death is a thief and it has robbed me of the one thing that was purposeful to me.

I have an appointment at 1:00 today to make funeral arrangements....wish I could crawl into a hole and die with him.

Paula


Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009
Lost the battle November 23, 2010
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Paula, may God bless you. You are in my thoughts and prayers.

D


Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
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I am so very sorry Paula. There are no words that can ease your pain. Heaven has welcomed another OCF Angel while those of us left behind wish it wasn't so.

My prayers are with you. Sounds very trite to say something like "if there is anything I can do", but you do know your OCF family IS here for you day and night. Some of us have limited speech so we're very good listeners!!

Hugs

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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