| | Joined: Jun 2010 Posts: 27 "OCF Down Under" Contributing Member (25+ posts) | | "OCF Down Under" Contributing Member (25+ posts)
Joined: Jun 2010 Posts: 27 | Thankyou!!! I will get the hang of it and give some better information,thanks for the quick reply.
Kindest regards
Tone
lyph node positive 10/08
Parotodectomy 4/09
Rad six wks 65 grey
Pet scan clear 03/10 no primary
Pet 01/10 base tonge primary
CT 3.5 Tumor 01/2010
radical tongue reconstruction
with forearm flap 2/10
severe Trismus 06/10
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Lisa and Glen, welcome to OCF. Glad you have found OCF to give you some guidance thru treatments. As others have mentioned, your attitude will be helpful in getting thru this. Best of luck with treatments.
Tony, you do not have an expiration date stamped on the bottom of your foot. (a commercial here is the US) Please start your own post so both you and the original poster have the full benefit of getting the advice and attention of other OCF members.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2010 Posts: 5 Member | | Member
Joined: May 2010 Posts: 5 | David,
I don't mean to give the impression we're unhappy with Glenn's Drs.
We're at Wilmont Cancer center affiliated with the University of Rochester (NY). They gave Glenn a big team of practitioners who've been meeting with us weekly and talking on the phone whenever we need more questions answered. I don't think I could ask for more.
There was some question about adding Chemo to the Radiation. The tumor board was initially on the fence. Ultimately, I have not seen anyone with Glenn's diagnosis who did NOT use Chemo as adjunct therapy so I and his Drs. gently talked him into it. He chose Carbo/Taxol instead of Cicplatin, unwilling to risk the neurotoxcicity. We did talk them into eliminating the Aerodigestive tract from direct radiation. He'll have bilateral neck radiation. Everyone in agreement now so on we go.
Glenn is not dwelling on his upcoming treatment. He's just not nervous. He tells me this is not too high a price to pay for a possible cure. He is extremely good at living in the now. Doesn't worry about things he can't control. I am in awe of his strenght and will simply imitate his attitude until the fear comes under control.
All the nerves right now are on my end. I have good support as I have worked in a hospital for 25yrs. My friends are all nurses and nurse practitioners, some having experienced various types of cancer treatment for themselves or loved ones. They're helping me a lot.
Thanks again for all the replys. I'll keep you up to date.
Lisa - CG to Glenn 58yr. smoker (quit after dx.) SCC TxN2bM0
Radical Neck Dissection 4/26/10, Carbo/Taxol and IMRT/Tomo starting on 6/10/10
| | | | | Joined: Jul 2009 Posts: 1,409 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 Likes: 1 | Lisa, that all sounds positive. Glenn seems to be getting excellent treatment and I applaud him for not being nervous! I sure was.
My thoughts are with you both.
David 2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | HI, Good and best wishes for victory in this fight you are in!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
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