| | Joined: Mar 2010 Posts: 1 Member | | Member
Joined: Mar 2010 Posts: 1 | I discovered a lump in the back of my neck. Was refered to an ENT. She did a CT scan and needle aspiration that showed SCC. I had a PET scan that shows only the mass in the lump in my neck. I am scheduled for surgery on March 29th. She will do many biopsys and then a neck disection. Have been afraid, becoming more positive with the more I learn. This was such a shock to me since I have always taken care of myself. I've never smoked, I dont drink alcohol, I've been a vegetarian for 10 yrs and a Vegan for 2. I guess until I have the surgery and biopsys I dont know what else I am going to have to have done.
Mary | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I would NOT, given what you just posted, NOT let anyone cut on me UNTIL I got a second opinion from a CCC. http://www.oralcancerfoundation.org/resources/cancer_centers.htm In many, if not most, of these cases you may very well avoid surgery and since your cancer did not originate in your node the Primary should be located and treated as advised by OC specialists like you will surely find at a CCC.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 |
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Mary, do as they say and get that 2nd opinion. CCC is the best place to head for. Call yourself if you have to. I did and they got me right in at Ohio State James CCC within a very few days.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Aug 2005 Posts: 307 | Hi Mary,
I don't know what part of California you live but if you live in Southern California, I highly recommend you go to UCLA. They are an excellent CCC. I have been so impressed with the way they treat my husband Ron. Best of luck and keep us updated.
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
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