| | Joined: Feb 2010 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts) Joined: Feb 2010 Posts: 55 | My husband just noticed a lump on the bottom of his tongue on the left side. He just got back from the dentist who did a brush biopsy. If it is cancer, my DH will have caught it early (1 cm).
It is my understanding that treatment is usually minor surgery and if it comes back, radiation. I had radiation for Breast Cancer and hated it. I understand that radiation in the head and mouth area is even more nasty.
How many Stage 1 on this board had radiation and what are the results?
Brother Dx oral cancer March 23. Invasive Squamous Cell Carcinoma: Mod Dif Anterior Floor of Mouth, Peridental Soft Tissue, Right Bony Margin. Lymph Nodes 0/56 Stage II,pT2,pN0 2.8 cm I was Dx b/cancer 9/2007. IDC Stage2 Grade2 2.4 cm 0/8 Nodes ER+ PR+ Her-2 Rad 33 no chemo.
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | I was stage 1 and did just radiation, no chemo, no surgery. Keep in mind that surgery to the soft palet does not provide for a very pleasant quality of life.
I am 4 months out and in fairly good shape after a not so terrible bout with treatment. I am back to a normal life with some minor changes and am almost back to a normal diet.
It�s no walk in the park by any measure but the alternatives were unacceptable.
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | I would do the radiation. It is usually reccomended even with stage one tongue cancer. It isn't fun but most of the side effects are temporary and go away. From what I've seen here tongue cancer is difficult to control and cure if and when it comes back. Better to eradicate it from the system the first time.
Don't mean to frighten you. Hoping for a speedy full recovery.
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | I think the best thing you can do is wait to see if it is cancer and this will need more than just a dentists say so.I would look for a referal to a doctor and get a full set of tests done.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Bear in mind that many brush biopsies come back stating further follow-up is needed and that would require an excisional biopsy.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | I was Stage 1, twice. If the wound is 1cm visable, that doesnt mean thats all it is. The tongue is really very large. Radiation of the head and neck area is not anything even close to what radiation for breast cancer is. With other cancers, a radiation patient can very easily continue on with their life when treatment is over. This is not so for many oral cancer patients. Some can struggle for years and may not return to their original self.
I do not want to make you worry, so I apologize if I sound scary. Your husband needs to prepare by eating everything he can now and not worry about gaining weight. Eat all his favorite due to treatments can change his sense of taste. Everyone handles treatments differently, some sail right thru while others continually stuggle. Unfortunately, Im a struggler. Doesnt make a difference what stage they were when it comes to this.
Hoping that your husband is a lucky one and has an easy time of this. Keeping a positive attitude helps, dont know if thats been proven medically but I do believe in positive thinking.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Feb 2010 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts) Joined: Feb 2010 Posts: 55 | He will get the results of the brush biopsy in 4-5 days. I am hoping for the best and very glad that our dentist is one of the few who do oral exams as part of his regular practice. The dentist stayed late in his office to do the biopsy. He is a good guy.
My brother and my husband both did tours in Viet Nam. So Agent Orange is an issue. If my DH's result comes back positive, I will be caring for two men with oral cancer at the same time. Life could get very interesting.
Last edited by notself; 03-01-2010 09:44 PM.
Brother Dx oral cancer March 23. Invasive Squamous Cell Carcinoma: Mod Dif Anterior Floor of Mouth, Peridental Soft Tissue, Right Bony Margin. Lymph Nodes 0/56 Stage II,pT2,pN0 2.8 cm I was Dx b/cancer 9/2007. IDC Stage2 Grade2 2.4 cm 0/8 Nodes ER+ PR+ Her-2 Rad 33 no chemo.
| | | | | Joined: Feb 2010 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts) Joined: Feb 2010 Posts: 55 | Cookie,wilckdds,
If the test comes back positive or suspicious, my husband will go in with me to my next visit to the my oncologist. He will arrange to get all the further testing and exams done. It will all be done at the Va Hospital in Little Rock where my brothers surgery is being done. Some VA hospitals are very poor, but the one in Little Rock, Arkansas is one of the very best.
ChristineB, Feel free to scare the living hell out of me. Not knowing is worse than knowing too much about things that may not happen.
The worst I had with my radiation is radiation blisters across the top of my chest and blisters under my breast. My ribs on that side are still sore over 2 years later and I have lost some lung capacity. I will have to watch out for spontaneous breaking of my ribs on that side. I am fortunate that the cancer was on my right side so my heart hasn't been damaged. At least I think it hasn't been.
All in all you are correct, Christine, that as long as the damn machine is properly calibrated, the experience of a breast cancer patient with radiation is a walk in the park compared to what I have read on this site. That is why I am asking whether radiation can be avoided without substantial risk of recurrence.
Last edited by notself; 03-01-2010 10:01 PM.
Brother Dx oral cancer March 23. Invasive Squamous Cell Carcinoma: Mod Dif Anterior Floor of Mouth, Peridental Soft Tissue, Right Bony Margin. Lymph Nodes 0/56 Stage II,pT2,pN0 2.8 cm I was Dx b/cancer 9/2007. IDC Stage2 Grade2 2.4 cm 0/8 Nodes ER+ PR+ Her-2 Rad 33 no chemo.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Please don't even think about what can be avoided.Just concentrate on what can be done.The recurrence stats for oral cancer are not good so you don't want to take any chances.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Notself,
Whooooa, one step at a time. First whatever it is must be confirmed as cancer before you have any decisions to make.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | i agree with david...start out by getting the results back. then let us know how that turns out...we will go from there. hoping for the best!
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | | Joined: Feb 2010 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts) Joined: Feb 2010 Posts: 55 | Good News,
My husband's brush biopsy came back negative. His dentist says he will do oral exams once every six months for a while just to make sure.
So now I am down to only one oral cancer patient (my brother) who is having surgery on the 23rd of March.
Thanks for your help.
Brother Dx oral cancer March 23. Invasive Squamous Cell Carcinoma: Mod Dif Anterior Floor of Mouth, Peridental Soft Tissue, Right Bony Margin. Lymph Nodes 0/56 Stage II,pT2,pN0 2.8 cm I was Dx b/cancer 9/2007. IDC Stage2 Grade2 2.4 cm 0/8 Nodes ER+ PR+ Her-2 Rad 33 no chemo.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Soory about your Brother but sure am glad about your hubby's good news. I offer him my congrats and my sympathy to your brother.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Great news about your husband! Im sure both of you are thrilled that he is well. Congrats!!!! Now both of you can help your brother get thru this. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | fantastic news on your hubby!
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
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