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#112642 02-17-2010 09:40 PM
Joined: May 2009
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Patient Advocate (1000+ posts)
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Okay, so can I say i am flipping out again. My right ear is hurting something awful again. Same thing happen with the first and second cancer. I know I am just 2.5 weeks out of treatment, but my ear was not hurting. it has just started hurting within the last few days. Please tell me it is just from radiation. I do not go back to the ENT until the second week of March and do not get a PET scan until May. That is so far away. How do I keep myself calm until then? Any ideas? Should I see if I can get in to my ENT sooner? I know he did tell me I could come in sooner if I was concened about anything, but it so expensive to go see him all the time. It hurts so bad. Perhaps the 75 patch was masking the pain as I stepped down to 50 today, because I ran out of 75 and have not had any major pain, and with Drs orders.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
Don't wait that long. You either have fluid build up, infection or both. They should give you Prednisone and/or antiboitics. Many of us had ear pain post Tx. You could rupture an eardrum. They can easily check it with an otoscope.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Gary #112658 02-17-2010 11:32 PM
Joined: Nov 2009
Posts: 396
Platinum Member (300+ posts)
Platinum Member (300+ posts)

Joined: Nov 2009
Posts: 396
angelia,
it seems like u are doomed to have EVERY complication before, during, and after treatment. at least u can be a help for the newbies that come on as to what can happen.
how do u feel about being that test dummy???
maybe one day ur luck will turn around.
i feel for u,,, i really do. im gonna send u some extra hugs ((((((((())))))))XXXXXXXXXOOOOOOOOOO!!!!!!!!!!!!!


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
Joined: May 2009
Posts: 1,413
Likes: 1
Patient Advocate (1000+ posts)
Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,413
Likes: 1
Thanks


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Sep 2009
Posts: 701
Likes: 1
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 701
Likes: 1
Angelia,

Call your ENT immediately and relay your concerns and fears. You should be seen asap.

Anita


Anita (71)
CG to husband, Clark, 82,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22, 6/25
PEG 7/21
Botox injections
Joined: Sep 2009
Posts: 618
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 618
Angelia,

My ENT let me know that the eustaition tubes are affected by the radiation (they swell and become blocked or semi-blocked). This can cause normal pressure pain because the pressure is not normalizing well between the eardrum and outside pressure, or can cause severe pain if fluids back up and become infected.

He said that mild pain due to pressure imbalance should be expected but I should contact him immediately if the pain was sharp.

I take my first airplane ride after treatment tomorrow and am worried myself as my ears have bothered me for some time due to pressure imbalance.

Heading to New York City for meetings. I�ll be dropping by Katz�s Deli for the best pea soup on the planet.

Kelly


Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
Joined: May 2009
Posts: 1,413
Likes: 1
Patient Advocate (1000+ posts)
Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,413
Likes: 1
My pain is a sharp pain and stops me dead in my tracks when it comes on. Same thing happened with the other cancers. Just got a call form my ENT and he said this something we should not put off. I have an appt nect Wednesday. Two weeks earlier than scheduled.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Jun 2009
Posts: 440
Platinum Member (300+ posts)
Platinum Member (300+ posts)

Joined: Jun 2009
Posts: 440
so glad u got the appt moved up. let us know how it goes.


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
Joined: Nov 2009
Posts: 396
Platinum Member (300+ posts)
Platinum Member (300+ posts)

Joined: Nov 2009
Posts: 396
glad u are having this checked sooner. keep us posted.


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Get on the Drs nerves until he can't stand the pressure anymore. Maybe that will help you see him and get an opinion. Ear pain on both sides wakes me a couple of times a nite and I understand you concerns Mam.. I take a swig of Magic Mouth Wash and half a perc. Then go back to sleep after they kick in.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here

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